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  1. EzzieD

    The ME Association's continued support of the Sussex ME Society

    I'm truly shocked that the MEA would promote this article - could it have been in error? It's so bad on so many counts and potentially dangerous in its 'advice'. Yikes. Dietary improvement can help, but the rest of it - just no. Wow, if only yoga really could accomplish all that. I used to...
  2. EzzieD

    Bristol - New Network - Prof Munafo

    Version 2 is great. There is one word I would change, though: in paragraph 2 line 5, 'speakisg' needs to be changed to 'speaking'! :)
  3. EzzieD

    Free nasal microbiome test/study at uBiome

    I have no idea what to make of my results, I did kind of think the site would provide at least a little commentary on what the results mean, as many other testing labs do. I Googled on the names of the bacteria listed in my post above but nothing much turned up. But if you're seeing an ENT...
  4. EzzieD

    Lightning Process - discussion thread

    Well, maybe what Parker says about the brain being able to change the physiology is true, because my physiology felt like it was going to upchuck my lunch after my brain observed those videos, whereas prior to watching them, I didn't feel like that. That does sound a likely motive.
  5. EzzieD

    Netflix "Afflicted" - ME included

    Same here. But, I discovered that if I try the Google Cache version, I can read it - the formatting is all over the place, but it is at least possible to read the article. See if it works for you (I use Firefox, am not sure if this will work for all browsers)...
  6. EzzieD

    Cognitive behaviour therapy for distress in people with inflammatory bowel disease: A benchmarking study - Chalder , Jordan , Hayee

    What on earth is the point of this ridiculous study? And how many taxpayers' pounds are paying for it, that could have gone to good research instead. Grrrr. Arrrgghhh. :speechless::sick: [/rant]
  7. EzzieD

    Free nasal microbiome test/study at uBiome

    Ah, OK, that's why I can't find it! I did think the format looked like it had changed since I last looked a couple of months ago. And yes, I'm not terribly impressed either - when I checked their site after six months of no results, there was a pop-up asking me to rate them on a scale of 1-10...
  8. EzzieD

    Free nasal microbiome test/study at uBiome

    Sorry, I don't see anything about 'diversity percentage' in the report page - where would I find that? There is a section called Microbial Diversity in a list on the left side of the screen but it's only available for gut microbe tests, and everything else I click on also requires purchasing an...
  9. EzzieD

    Free nasal microbiome test/study at uBiome

    Finally just got the results of the throat swab, after only a nine-months wait! They said the nose swab was unable to be processed and to contact them for a re-do, but being outside the US and the postage costing a fortune, I'm not going to re-do. The throat results, if anyone wants to...
  10. EzzieD

    Bruce Levin to speak at Columbia: "How NOT To Conduct A Randomized Clinical Trial"

    A PDF from the talk is up now: http://irvinginstitute.columbia.edu/pdf/How_Not_to_Conduct_in_Randomized_Clinical_Trial_Levin.pdf . Good stuff!
  11. EzzieD

    Bruce Levin to speak at Columbia: "How NOT To Conduct A Randomized Clinical Trial"

    That's great, I look forward to seeing the video. Thanks for asking them about it, Dr xxx!
  12. EzzieD

    Epigram: Senior Bristol researcher resigns after admitting to research misconduct

    Strangely, the BristolCMM Twitter account is now back up, at least at the time of this post, and yesterday's critical tweets are still there. o_O Very surprising that it would re-appear, and intact - wonder how that happened, and how long it will stay up?
  13. EzzieD

    BMJ: Pressure grows on Lancet to review “flawed” PACE trial

    Spot-on. As someone who acquired ME in 1983 defined by Ramsay's description back before 'CFS' was invented, and taken seriously as a physical illness by the doctors who did believe it was 'real' (some didn't, but many did), I hear you 100%. As well as Ramsay ME, so many unfortunate people with...
  14. EzzieD

    BMJ: Pressure grows on Lancet to review “flawed” PACE trial

    Wonderful to see that Dr Kerr is back in the UK and in the ME field again. :thumbup:
  15. EzzieD

    My doctor told me I was just tired: 13 years later and ME has taken over my life

    It is nicely written, but I wish so much that the 'What are the symptoms of ME?' box didn't perpetuate the myth that ME is tiredness: "The main symptom of CFS/ME is feeling extremely tired and generally unwell." They did add 'generally unwell', but that's very vague; feeling tired and generally...
  16. EzzieD

    Medscape: A 36-Year-Old Woman in Undetermined Pain: Osmosis USMLE Study Question of the Week

    Yes, the organisation who published the question has now retracted it and apologised, which is very good of them. But one wonders how something that blatantly bad made it past their content reviewers in the first place!
  17. EzzieD

    Free nasal microbiome test/study at uBiome

    Oh no, that's a shame, I'm sorry to hear it happened to you too. In my case, they didn't specify whether it was the throat or the nasal swab, maybe that means it was both?? I did follow their instructions on how to take the samples, so am not sure how a 'sampling error' would have occurred...
  18. EzzieD

    Free nasal microbiome test/study at uBiome

    @Inara and @TigerLilea , good to hear that you both got some actual results back - I was beginning to have my doubts as to whether anyone would! Hope the results will be of some usefulness for you both. :thumbup:
  19. EzzieD

    Free nasal microbiome test/study at uBiome

    Ah, you were lucky! I heard from them today too, but with less than helpful info: Argh. Not very impressed after waiting six months. If sending me another kit 'free of charge' means another $20 postage from them to me plus another $5 postage from me to them, I'll have to give up and resign...
  20. EzzieD

    Michael Sharpe skewered by @JohntheJack on Twitter

    The stupidity of CFS Research's replies on Twitter often astound: Well yes, those indeed "aren't really synonyms" - that's because the CDC didn't "rename" them, they are entirely different things... :banghead:
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