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I'm so sorry you experienced a similar backwards-moving scenario to what I did. And I'm sure there are tons more folks who have experienced the same issues. It is mindboggling how all ME-related medical knowledge regressed after the 1980s. Well, we have the two clowns who wrote the two...

Or at least 'heavily flu-like' or 'the worst hangover you ever had', as newspaper items on ME used to say back in the 1980s when I got it. AFAIK it was never described as 'fatigue' or 'tiredness' then. Doctors actually accepted it as a physical illness (although some did think it imaginary) in...

The irony of this coming from the SMC is just staggering, LOL. :rofl:

I do wish people would stop calling it 'chronic fatigue' which is an entirely different condition from 'chronic fatigue syndrome'; the misnomer just causes confusion and perpetuates misinformation. But that said, yes, it is an excellent article! So good to see some truthful stuff about the...

The video is still at the link given in this post: https://www.s4me.info/index.php?threads/esther-crawley-talk-at-tedxbristol-thurs-2nd-bristol-disrupting-your-view-of-me.286/page-6#post-11328 . Probably just the copies re-uploaded to YouTube have disappeared.

Yes, absolutely. I was going to say the same in my earlier post but in much worse language, ha ha. When I became ill, I was working at a physically demanding job involving hauling computer kit from site to site, going to the gym twice a week, and had a very physically active life all round...

"Gradually increasing the intensity of your exercise over time may help reduce your hypersensitivity to exercise, just like allergy shots gradually reduce a person's hypersensitivity to a particular allergen." ??? What now? An allergy-like "hypersensitivity to exercise"? That's one I haven't...

Echoing what Valentijn said above. Fatigue is not the main symptom in ME/CFS. For example, I never feel particularly tired or fatigued, but very, disablingly, ill (flu-like) and that is the case for most of us. I truly rue the day that a panel of doctors in the 1980s decided to invent the...

Excellent letter!

Sounds good, but clicking the link to the ruling leads to a '404 Page Not Found' error page: https://www.asa.org.uk/non-compliant/kathy-kent.html . A search on Lightning Process on the ASA site just turns up a short piece referring to the 2010 and 2012 judgments...

Exactly the same for me, except that I'm moderate-severe and my cortisol test result is allegedly normal.

Ugh, someone pass the sick bag. :yuck: Did anyone else catch the irony, when discussing some traumatic aspects in his childhood: Hmm... In all, a lot of hot air from someone who clearly loves being the centre of attention. And playing victim. :emoji_zzz: +1000

Hard to choose for me, too, the first choice being the nearest. Started out severe, got progressively worse for the next 8 years, then improved notably when I was able to get treated for Lyme Disease two years ago at a private clinic (NHS wouldn't do anything for me whatsoever, except to offer...

Oh, this video clip is wonderful! So pleased to see tables deservedly turning at long last and ridicule being given where it's due. Hoping that more news outlets will follow suit.

TBH, I can't see even that being an advantage for us - the therapists would simply spin it to make us look like we answered Strongly Disagree to everything because we're 'depressed', wouldn't they? Argh, we just can't win. That's probably just about right! And the emoticon you want is...

My personal response to this questionnaire is that it makes me feel sick too. Patronising, lacking in awareness/insight/empathy. As mentioned above by Adrian, would make more sense if administered after recovery rather than while ill, if at all. But to someone who is terribly chronically ill...

Hah, yes! She will put on that furrow-browed I'm-such-a-martyr face she does, and recount how even TEDx has now fallen to those evul activists who have dedicated their lives to trying to stop her world-leading research! (And, trot out 'that' slide yet again and how they threatened to cut off...

Reading that document, it looks like Esther fails pretty much everything under Guideline 4: Only Good Science. So then I wondered what one could do as respects notifying TEDx in such a case. Reading further, there was this paragraph at the end of Guideline 4: Re my bolded bit: Remember how...

As well as the self-delusional aspects of her talk, there is also her speaker bio page at the TEDx website which claims that Esther's "research is world leading." https://tedxbristol.com/about/person/esther_crawley . I take it that TEDx doesn't verify what their speakers claim about themselves...

Thank you! It wouldn't play in my browser (Firefox), got a Format Not Supported error message, but I downloaded it with the Firefox add-on Video Download Helper, and it's actually the full video, not just an audio recording! It's pixellated, but watchable enough to see Esther's performance...