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  1. EzzieD

    BPS proponents don't respond well to criticism

    Oh dear, I just looked at that link (through Google Translate) and had to chuckle at the reviews. All are 1-star, except one glowing 5-star which must have been a buddy of his? According to one of the reviews, the book was self-published, therefore had no editorial review. (Not that I have...
  2. EzzieD

    BPS proponents don't respond well to criticism

    Oh my, that is truly hilarious. Such an over-sensitive author! LOL, could be interesting!
  3. EzzieD

    Science for ME page on MEpedia

    I, too, am unable to post all that much due to limited energy but am always here 'in spirit', reading every day and darned appreciative that this site exists. So I'd like to be counted as 'active' too.
  4. EzzieD

    Survey: what explanations GPs use for conditions that have no agreed biomedical cause and the impact of those explanations on social support & stigma.

    I answered it too, and also found the assumption that those filling in the survey were employed baffling. So I, too, chose the middle option of those questions. There really should have been an 'I am too sick to work' choice. Not sure what the survey will achieve, but kudos to her for taking an...
  5. EzzieD

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Absolutely. I got ME in 1983, it was considered a physical illness, and the research being conducted was biomedical. The psychiatrists barging in, the renaming to 'CFS' and the notion that CBT/GET was any kind of 'treatment' for this serious physical disease, had not yet happened. Yes, if only...
  6. EzzieD

    Yet another NHS reform !

    The NHS is weird. I worked for them for 15 years and during that time they had three reorganisations, which accomplished nothing useful that anyone could see. Just a lot of disruption and extra work for everyone, shuffling things about, moving premises, job titles being changed. Colleagues who...
  7. EzzieD

    AMA Journal of Ethics : The Importance of Listening in Treating Invisible Illness and Long-Haul COVID-19

    Sharpe is so entertainingly devoid of self-awareness. And his putting himself on a par with Feynman is downright silly.
  8. EzzieD

    A general thread on the PACE trial!

    A certain somebody felt compelled to reply to that tweet:
  9. EzzieD

    AMA Journal of Ethics : The Importance of Listening in Treating Invisible Illness and Long-Haul COVID-19

    Excellent piece. And on Twitter, somebody just had to get his little dig in:
  10. EzzieD

    BPS attempts at psychologizing Long Covid

    The only explanations that make sense of any of this are a) these doctors are in bed with The Establishment as part of a rarefied bubble of academics whose main concern is of saving government money on the cost of treating patients with real treatments, and b) Escalation of Commitment and Sunk...
  11. EzzieD

    BPS attempts at psychologizing Long Covid

    Omigosh, that needs to win a special prize for stupid! :trophy@ Can't these people hear themselves? Can't the colleagues they say such ridiculous and illogical things in front of, hear them? I despair, there are no words, just :banghead::banghead::confused::facepalm::eek::ill:
  12. EzzieD

    Who is Simon Wessely?

    Methinks you've hit the nail squarely on the head. Every tedious and self-aggrandising interview, lecture or opinion piece I've read of his over the decades has reinforced my opinion along those lines. Aha, that's what speciality he's a 'scientist' in, then! Mystery solved!
  13. EzzieD

    Who is Simon Wessely?

    Wish I could like that post 100 times. Feynman = wonderful. They rarely make 'em like that anymore, that rare combination of brilliant and humble. Can't help wondering how baffled he might be at Wessely being considered a 'scientist' and his continual awards and prestigious positions for doing...
  14. EzzieD

    Who is Simon Wessely?

    Oh, gawd... :yuck: Why? It's utterly bizarre, why is he even considered a 'scientist', never mind an outstanding one? Surely there must be many more deserving candidates for such an accolade.
  15. EzzieD

    Well known, famous people reported to have Lyme Disease.

    Good grief, it's just like Simon Wessely winning the Standing Up For Science award. :yuck: This was also amusing: From the guy who uncritically reports about what a great cure the Lightning Process is.
  16. EzzieD

    Weʼre raising £35,000 to Continue Vital ME Research, Keith Geraghty, 2021

    Such great news, hooray!! :balloons: :cookie: :cake: (£69 over the goal at the moment, maybe there will even be some more by the end of the day.)
  17. EzzieD

    Functional Neurological Disorders (FNDs) in the media

    I truly fail to understand what the point of the Spectator article is, or why anyone would publish it. What is it supposed to accomplish? On what planet, certainly not here in Britain, would a 'well-known malingerer' be 'receiving his tenth unnecessary CT scan'? Even getting one scan is...
  18. EzzieD

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Wow, I didn't know all that about him either. Now there's someone who has experienced real threats and abuse, which makes the BPS crowd's whiny claims of threats and abuse from very ill, incapacitated patients look even sillier than they already do. GM is indeed an impressive guy.
  19. EzzieD

    The use of the labels ME, CFS, ME/CFS

    Oh absolutely. I brought up the letter as a historical illustration of how a disabling multi-system physiological illness got turned into 'idiopathic fatigue'. However, Strauss is gone but the idea that ME/CFS = merely fatigue still prevails. I indeed hope things move forward but it rankles...
  20. EzzieD

    The use of the labels ME, CFS, ME/CFS

    I just found a copy of the full letter! https://d3n8a8pro7vhmx.cloudfront.net/meadvocacy/pages/167/attachments/original/1585814547/Strauss-Fukuda_Letter.pdf?1585814547 Further to the excerpt in the tweet I posted on the previous page, this is also telling: Wow. And again, it's 'my own sense' -...
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