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  1. forestglip

    A crumb of a clue on epidemiology

    The geographic clustering is very distinct for ME/CFS searches. Here's a map for proportion of each state reporting Scottish ancestry calculated from the B04006 census dataset. It's also clearly highest in the same two general regions:
  2. forestglip

    A crumb of a clue on epidemiology

    It's kind of difficult to see the actual pattern among states on the Google Trends map for ME/CFS, so I made a map with much more contrast. The two upper corners of the country seem to have the highest scores for ME/CFS searches.
  3. forestglip

    Well-known, famous people with ME/CFS (public thread)

    Camisado highlighted the band Moodring in another thread: News article on the website Metal Injection: HUNTER YOUNG of MOODRING: "When I Get That Low, I'm Like, ‘Oh F*ck, What If I Don't Come Out Of This?’ Because Some People Don't.” Link
  4. forestglip

    ME/CFS Music

    I like it! Lyrics:
  5. forestglip

    Opinion Exploring duplication in reviews of Long COVID: 2020-2023, 2026, Raine et al

    Exploring duplication in reviews of Long COVID: 2020-2023 Gary Austin Raine; Claire Loise Khouja Background The unnecessary duplication of reviews is a recognised problem in the field of evidence synthesis. This paper reports findings from a study exploring potential duplication of effort in...
  6. forestglip

    A crumb of a clue on epidemiology

    Yeah, I think just too few searches from those countries. For example, for Greenland for the past day, it says "Hmm, your search doesn't have enough data to show here."
  7. forestglip

    A crumb of a clue on epidemiology

    I jotted down some quick notes from Wikipedia on what each of the meds above is primarily used for: I tried to look for cases of different drugs correlated in the same direction and which treat the same disease:
  8. forestglip

    A crumb of a clue on epidemiology

    Note the significant positive correlations with stimulants: - The amphetamines "Dextroamphetamine Sulfate Er" and "Adderall Xr" - "Methylphenidate Er" (Ritalin) States in which more people are prescribed stimulants are the states where more people search for ME/CFS, which seems to support the...
  9. forestglip

    A crumb of a clue on epidemiology

    I've been having some more fun with the search trends data trying to find what else it correlates to. Medicare is the health insurance provided by the US government. They provide state-level data for "The total number of unique Medicare Part D beneficiaries with at least one claim for the drug"...
  10. forestglip

    Trial Report The Effect of Fluvoxamine and Metformin for Fatigue in Patients With Long COVID, 2026, Reis et al

    I think they did test that. It seems the results were similar for fluvoxamine whether they used the outcome of fatigue or depression.
  11. forestglip

    Genomic interplay between deployment exposures and Gulf War illness in Million Veteran Program participants, 2026, Qiu et al

    I've just skimmed, but it looks like they retested the PON1 interaction from a previous study (Haley 2022), but this time taking population structure into account.
  12. forestglip

    Genomic interplay between deployment exposures and Gulf War illness in Million Veteran Program participants, 2026, Qiu et al

    Genomic interplay between deployment exposures and Gulf War illness in Million Veteran Program participants Abstract Veterans of the 1990–1991 Gulf War (GW) experienced an elevated burden of chronic health conditions, most notably Gulf War Illness (GWI). While the disease etiology remains...
  13. forestglip

    Fred Rossi - Writings related to ME/CFS

    Yeah it's really good. I can imagine parts of it being read in a voice-over at the start or end of a movie about a person with ME/CFS, where the subject of the movie speaks to the audience with some insightful or moving words for a bit before the fourth wall comes back down. Like the intro of...
  14. forestglip

    UK: PRIME Workshop 2: The Similarities and Distinctions between Long Covid & ME/CFS, 24th April, 2026 2-5pm GMT

    I got an alert about a version of the document which includes abstracts for the five talks: https://www.actionforme.org.uk/wp-content/uploads/2026/03/PRIME-Workshop-2-Programme-Talk-abstracts-.pdf
  15. forestglip

    USA: The RECOVER Initiative - Long Covid research

    The results of RECOVER-VITAL (large double blind trial of Paxlovid) were posted on ClinicalTrials.gov earlier this month: https://clinicaltrials.gov/study/NCT05965726?tab=results It looks like the results show that the Paxlovid group did not significantly improve in any outcomes.
  16. forestglip

    MENSA, a Media Enriched with Newly Synthesized Antibodies, to Identify SARS-CoV-2 Persistence ... Viral Reactivation in Long-COVID, 2024, Haddad+

    I don't think Figure 3 is showing an increase before the infections/vaccinations. I would assume the circles on the lines represent the actual dates of testing, with the lines just connecting the circles. So the upward sloping line before an infection might just be a low pre-infection point...
  17. forestglip

    A crumb of a clue on epidemiology

    The number of people that responded for any given ancestry will affect how strong the correlation can be with Google Trends, both because of less precision due to lower sample size and because an ancestry with a small population will likely explain only a small part of the variance in search...
  18. forestglip

    A crumb of a clue on epidemiology

    I previously tested the correlation of searching for ME/CFS with all the ancestries available in the US census data, to see which others may be as correlated to ME/CFS searches as English ancestry. The first time, I used the past 1 year of Google Trends data and the 2024 5-year census data for...
  19. forestglip

    ME/CFS Music

    Translated description from this video (note that a human wrote the lyrics and an AI made the audio):
  20. forestglip

    Review Cognitive behavioural therapy for the treatment of chronic fatigue syndrome in adults – a meta-analysis, 2025, Kolala et al

    It looks to be published now, though under a different URL for some reason. I copied the introduction, since there's no abstract in this version. Commentary: Cognitive behavioural therapy for the treatment of chronic fatigue syndrome in adults: a short analysis of the meta-analysis Mark Vink...
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