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I argued and fought for a dietician appointment, and I got one. The advice was to eat what I can and not worry about losing any weight, I should keep it on to keep me going for when I lose the ability to eat. So why are people being denied healthcare on the basis of BMI? That’s the more...

What a short, brief “to the point” intro.

I’d be up for a dull admin task which requires very low skills like categorising papers by type and number of participants (I am famously not at all scientific).

And yet, he does. It’s fascinating.

I dunno what about ME searches compared to education, income etc. The lower states are warmer aren’t they? Rainfall vs ME? The southern states have the Lyme ticks I think.

He says that he was told he met the Canadian Consensus Criteia for ME. He wasn’t diagnosed. He really should have got himself referred if he was concerned, but then he recovered so I guess there wasn’t time.

Well that doesn’t pay the salaries!

The effects of misdiagnosis may be minimal “to the medics”

Those companies constantly update their information as well. I’ve had several updates and at one time was showing some German ancestry which then disappeared! For me it’s not that serious to do the “where am I from” dna because I knew it already, it was confirmed by the dna test, and I’m not...

In colloquial language terms, is it worth trying knackered Shattered Puggled Deid I’m sure there’s a massive influence on results of English being the lingua Franca as well as English-speaking countries being generally populous and with good access to decent internet and healthcare (apart from...

Justice For ME They have added some personal profiles on their fundraising page:- Catherine Hale, Naomi Bem, Madeleine Wallner, Galen Warden, Sarah Boothby...

I had an update from Justice for ME. It's been a long time since we wrote to thank you for your support. We've been working hard with our lawyers to make sure they understand how PEM (post exertional malaise) is the threat to people with ME, the risk for NHS services to manage, and the biggest...

Pretty distinctive Rolex hand tattoo on the photo. Was quite common in Latino gangs, so I understand. https://www.livpost.co.uk/professor-paul-garner-was-delighted/

I said it before, he's not even a reliable narrator to his own experience, Ive no idea why he thinks people should bother with what he says. Did he have Covid and long Covid or did he have ME/CFS? Was he fit and well before Covid or was he struggling with unspecified tiredness? Was the lingering...

There is a joke in there somewhere

Oh yeah, like back in the days where being a vegetarian was suspicious and not normal, church halls didn't allow yoga and yogurt was only from the health food store. Around 2011 I reached the end of the line with NHS where the last thing they could recommend was a referral to a counsellor who...

Willing to give it a go if you like…how do I get it pls?

I think you could say Underhand Insincere Obtuse I feel it’s disingenuous though, truly, because he was speaking for, and to, the ME community around that time so to present it as somehow receiving “unsolicited” advice/emails is disingenuous. Receiving unsolicited emails would suggest that...

People send public figures unsolicited emails. And tweets. It’s the way of the world. I myself receive a number of unsolicited emails from Nigerian princes, various special offer jackpots and sometimes Local Women who want to chat (apparently). He was posting a lot about how the ME community...

I thought he was trying to retcon ME more recently? I’m sure we saw him a while ago saying that he’d been having tiredness problems in the year before he got the very short bout of long Covid. Can’t imagine any other reason a man of retirement age taking part in regular physical activity like...