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I see this groundbreaking new research is going down as expected on socials

I am reminding myself of the work of Furedi on climate change, your man AL is a temu knock off of the OG, he really is. And it’s a shame because it’s an interesting discourse. I don’t agree with it, but it’s interesting.

It’s almost as if the “personality” is incidental to the illness, and not the driver, or source, or really anything to do with it. It’s all so “othering” isn't it? Might as well look at how many people have eaten custard.

Established science is allowed. D3 deficiency can be seen on a test and treated with D3. People thinking they have D3 deficiency make it their whole personality for no good reason and are part of the silly “wellness” tribes. It’s only things science has yet to establish (ME and LC) where...

Yes, we are both a “type A alpha overachieving” personality who does too much, whilst also being a neurotic fearful scaredy cat who does too little.

Imagine thinking you have a viewpoint that might be controversial and likely to invite critique, then imagine unfurling it like this, and carrying out these behaviours.

Hopefully he was able to find someone to engage with his discourse in the way he wanted, before the whole book drops. It’s a shame he wouldn’t clarify what his arguments are because it’s a bit unclear.

Feels like a fad. But am not a scientist.

Ironically, I found his article boring and tedious because it’s the same old script. Plucky outsider dares to speak the truth others can’t and won’t hear. The trouble is, not only is the subject/key themes old hat and been done to death but also the drama and framing is doing more of the heavy...

the good standard in air quotes says it all so succinctly. IIRC Tyson was happy to explain, at length, the process and references and underpinning of questionnaire construction and validation, and why this questionnaire is in all ways perfect. And of course, Tyson has ME therefore you cannot...

I think asking sick people to pay for something repeatedly until one works is as bad as the junk journalism, promoting junk science which causes sick people to pay for treatments which haven’t been properly tested. I guess that’s why we construct naratives because nobody really knows anything...

If it helps, I say “bandwidth” instead of baseline. There’s a vague range of activities I could do, most days, that probably wouldn’t provoke PEM. Of course you must also bear in mind that it’s not only “activities” which provoke PEM (for example if I caught a cold, have hormonal issues, a...

Well some people seem to want to analyse everyone else’s position and complain about theirs, rather than try and build partnerships and spread the benefit.

AL wrote an article analysing narative and tribalism but then he seems to be part of the narative and tribalism himself, joining in online with gusto but also unable to find anyone to discuss the article in the way he sees as fit. A quixotic position to be in. Strange, even. Nothing about it...

I noticed in the Wired article that some people had to do a few different brain training programmes before one worked. I hate to be a bumbling and biomedical-obsessed “let’s quantify treatments with a trial” kind of patient advocate, but if anything this undermines the brain-training case...

Probably needed to speak to someone given his own “I met the criteria for ME” story wasn’t all that straightforward. As I always say, whichever side you may be on, he is not a reliable narrator, he can’t be doing the credibility of these programmes much good.

The brain training neuroplasticity lobby would like everyone to know they are not psychologising anything and the believe it’s real. But also cured by talking.

It’s a weird space to be in, to have had to actively and doggedly campaign and advocate and be harmed, and to be getting some recognition, relevant research and investment into scientific biomedical causes and treatments, to immediately then be cast as the playground bullies/establishment...

It’s not about the specifics, it’s about the framing. You can’t fight a rumour. The most basic form of NLP is to have a bit of truth then build agreement (obviously having some truth in your lies predates NLP but surely neuroplasticty fans are on the NLP train too?) Yeah no NHS has ever been...

It’s annoying but it’s really better to just ignore them, he sounds hyperbolic and irrational, let him crack on, lol an him @ Nice Comms, which will probably be an NHS social media intern casting an eye over and going “ok mate, not worth replying to”. Scarlet for him. This framing and language...