Search results

for purposes of this post, i will be agnostic on whether francis is doing everything in his power to do the right thing. with that stipulation, it's possible he's burning the midnight oil for us, but is constrained. i do not want to accuse such a person. but few if any at this point would...

http://www.meaction.net/2017/02/03/pwme-people-with-me-are-being-murdered-by-neglect

@TiredSam perhaps the writer or editor turned a long interview into a /remarkably/ caa-like piece about our emotions. is biology not their job in bethesda? not to mention the joke koroshetz trots out about "never heard anybody ask for less resources ha ha har har hee hee hoo hoo" [paraphrase]...

https://www.healthline.com/health/multiple-sclerosis/multiple-sclerosis-disease-courses

that definitely needs correction. pwme report more courses than r-r, including all four commonly described ms courses and many more besides those.

i doubt being on record mentioning m.e. in the press every once in a while is going to answer the inevitable pointed questions from congress about francis's lack of urgency. @MErmaid i was trying to confirm my recollection that they have gathered approximately 15 confirmed controls and 2...

is it true that, after all this time, there are only 2 confirmed case subjects for the clinical center trial?

tsdr but: > CFS is purely a symptomatic condition. If you have no symptoms you do not have CFS. Therefore if we can relieve/improve the symptoms we relieve the disease. "granny smith apples are purely color apples. if there is no green you do not have a granny smith apple. therefore if we...

why is a startup more able to absorb risk than a large company?

my bad for not noticing the name difference.

tsdr but same name as: http://ojs-seed.neagen.it/index.php/rhc/article/view/280/html Reviews in Health Care 2012; 3(4): 257-270 Diseases Narrative review Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Leonard A. Jason 1, Kristen Barker 1, Abigail Brown 1 1 Center for Community...

i don't want one second of any good person's time unnecessarily spent dissecting anti-scientific theories or being influenced by them. it's good to look at muscle fibers if that's a priority. and it's good politically to slog through every last detail of, for example, the harrassment or...

it is merely that 24h urine tests are physically demanding. i need to bunch them up to amortize the health impact. i recover from blood tests in fewer days, because the only impact is somebody visiting [unless the prep is onerous]. [btw huge question: will drinking baking soda solution...

i tested for chromogranin a high (217, normal being 0-95). the idea was to test for mcas. is this a plausible result due to mcas? === my doctor knows nothing about mcas, but wants to learn. apparently a lot of things can cause elevated chromogranin a, including mast cell disease and lupus...

@Esther12 i agree it can be helpful for us to not hand them opportunities. to me, we need to use a more accurate term for those who deny the existence of a serious disease; grossly impede science into it; use hate speech against its sufferers in mass media that has had literal parallels to...

m.e. is capable of producing stress intolerance. this has nothing to do with psycho-woo. it is one of many stressors. orthostatic, physical exertion e.g. as mentioned by iom, cognitive, temperature, stimulation intolerance, stress from interpersonal conflict, and stress from institutional...

convention on the rights of the child === Article 14 1. States Parties shall respect the right of the child to freedom of thought, conscience and religion. === there is more there. ratified by United Kingdom of Great Britain and Northern Ireland on 16 Dec 1991...

are the detractors saying 7d course of prednisone is dangerous? my concern is that even if it is not dangerous, my lungs will just get inflamed [or whatever it is] again.

i like jen's comment that the goal is not awareness. the goal is organizing.

hi @Nathalie Wright , impressive! thank you! as has been pointed out, this looks like an excellent article to point people toward. i was getting bogged down forever in deciding among various excellent articles that told part of the story or were not in major mainstream newspapers or...