Search results

that sounds significant. are any of these things being studied in pwme? - proportion of pwme who get worse - length of time the worsening lasts in pwme - anything else [severity, coadministration, disease course, did subjects /use/ newfound ability] that seems related to the worsening -...

wanted to first thank you and second ask if we know more precisely what we are trying to achieve? or if we know pros who know what types of images are best for defending groups? for example, here are some things we might or might not want. - representativeness [not same as below] -...

leads to this: === Chapter 14 - The role of the anterior and midcingulate cortex in the neurobiology of functional neurologic disorder Author links open overlay panelJuan PabloOspina1RozitaJalilianhasanpour1David L.Perez2 https://doi.org/10.1016/B978-0-444-64196-0.00014-5 Get rights and content...

yes being told "we completely understand" sets my teeth on edge.

if i personallly had a subunit vaccine it would have to be different from the novavax, from what i hear. the saponins allegedly used in it for adjuvant could trigger life threatehing angioedema which /extremely/ tiny amounts of soaap can. the type of angioedema is not determined, but it is...

> Individuals and their healthcare providers should work together to make these decisions what if you do not have any healthcare providers who understand your diseases and cannot get them? where is the study? what kind of reactinos are we talking about for 19%? what severity of reactions?

what is the relation of m.e. severity level to reactions reported or observed? [and to decisions that have been made or dr. recommendaions.] how soon will any of these studies on fractionated dosing etc. be done? the rumored klimas study? etc.? i likely have a note someplace on "klimas...

could a vaccine against [containing or producing] a non-spike part of the virus be safer and effective? i am assuming bits of virus that are not spike are available to antibodies and t cells. do you think pwme etc. more vulnerable than normals? i was under that impression. what abot severty...

> Have you talked to your GP about your concerns around the vaccine? yes. he knows nothing about m.e. or my type of angioedema [whatever type it is idk either which is rare and is triggered by extremely tiny doses of a common substance] or mcas [which i test positive for and i am taking 4-6...

> It was reported by RNZ as a quote from a MoH spokesperson, that there is not sufficient evidence to suggest that lower dosing will mitigate adverse reactions to the vaccine. It is correct that no trials have been conducted into reactions to lower dosing for pwME. However, in studies that have...

> If all Covid-19 vaccine trials are funded, designed, conducted, and analysed by the manufacturers - which is known to distort the results to favour the sponsor’s aims - then more should be done to gain access to the data to allow for independent scrutiny. that sounds familiar, and so does the...

i thought i would raise it as a possibility. very off the cuff. assumptions: 1) some proportion of medical and biomedical specialties are sometimes said to hate m.e. and other diseases. government org charts (e.g. at nih) might or might not have a similar characteristic. 2)...

can we get the long covid alliance to change the status quo in the us and uk and influential countries? it is very wrong and not ok to allow these diseases to stay at the bottom of the garbage dump with existential risks for the most vulnerable and severe in both directions of teh choice to...

what would you have changed if you had waited? e.g. what kind of information would you have seen that would make you decide not to get vaccinated, or protocol that you would have used, or different vaccine, etc.?' [ETA: or would you still be waiting? also in case it clarifies this is not a...

:[. is that more than with most vaccines i wonder? if i were healthy i'd take the risk of rare effects. but idk if we are getting good statistics? [ETA: a common seeming specific list of symptoms?] one thing that disturbs me is that s4me is a relatively small sample of science-oriented pwme...

> should become standard practice for ME organisations to supply good quality realistic photos is it possible that the smc, or others, do something like that? === those who choose or approve images and headlines need to know above all that the disease is serious and multisystem. then the...

judging by abstract you have to hand it to them for - dedication to the cause as @Ash said -- this is a genre - wall of text - seeming to refer to jl austen's /how to do things with words/ === you hereby graduate. i hereby pronounce you man and wife. [these are performatives, uttered...

what is one supposed to do to meet the conditions of this mysterious word pacing? i have to rest before and after. i can imagine it meaning don't overdo. and also i can imagine it meaning bounce around on the moon. i can imagine it meaning, soldiering through it [or "just turn your disease...

vvv Source: Medical Immunology Vol 23, #4, pp 975-980 Date: July/August 2021 URL: https://www.mimmun.ru/mimmun/article/view/2439 https://www.mimmun.ru/mimmun/article/view/2439/1456 Early diagnostics of autoinflammatory disorders associated with post-viral chronic fatigue...

Merged thread === From the desk of Ronald W. Davis, PhD Chair of OMF Scientific Advisory Board ME/CFS Working Group at Stanford Meeting September 8-10, 2021 Summary by Ronald W. Davis, PhD, and Janet L Dafoe, PhD This was a great meeting and showed a lot of activity and progress in ME/CFS...