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I think this is an appealing idea. I don't think it will apply to cognitive/emotion/focus-based PEM, though. Still cool to try.

I still want to rail. Especially when inserting ideology into the mix. Ideologies come and go, though. This is sustained bullshit that has endured scores of years, and spanned countries and continents. I'm not sure what the constant is beyond sick people being mischaracterized and ostracized...

This is intriguing. One point, however: channelopathies can also manifest with delays.

I worry that this is a top down phenomenon, one with many points of influence. I think it predates Wallit,, that he is a downstream ripple, a means to an end, much as the BPS school is. Someone years ago suggested the way out of this morass would be through political leverage. Maybe so. In...

Oh dear. If there are persistent foreign antigens at play, then no, this argument cannot be right. This seems to me more dangerous than wishful thinking. ETA: They'd have to demonstrate an agnostic antigen, one common to groups of people, self-generated, but not a remnant or debris from the...

To me this feels like a contrived forced fit. It reads like that. The logic feels like that. The entire Wallit thing doesn't fit. They jammed this thing in. So why force it now when the spot light is on? Well, it could be Stupid and greed and culture. They seem to be present everywhere in...

Fair. But looking at how they initially approached the study (2015/2016?), in conjunction with the cluster-fuck end product, may suggest they had a pretty good idea of where they wanted to go. Oh, I don't think it's going to be limited to just one patient community.

Mass hysteria? Made sense to me given the roots of the NIH coupled with how it's handled other contested conditions. Maybe they'll call in the interoceptive team to ramrod an investigation.

I think immune tolerance will eventually be shown to play a role, but that is tied into pathogens (e.g. latent viruses). This is a theory that seems to have morphed from just pregnancy and infants being born with it. I've been trying to get my arms around it, but having difficulty. It could...

https://krisnewby.substack.com/p/the-rise-of-the-lone-star-tick "During the last half-century, lone star ticks have rapidly spread from their original territory in the Southeastern U.S. While some researchers attribute this to climate change and shifting land-use patterns [1], I propose that...

Chronic Lyme seems out of place in so much as there has been an ongoing NIH clinical study into it since 1999 or there abouts. That's a quarter of a century of supposed parsing. So it's - on paper - clearly been investigated at length. Which suggests it's stalled at best, or become political...

Seems the NIH is shooting for Pravda-like accuracy and truth. Ironic that this is a NYT article.

That's just embarrassing.

Is technology making it difficult to muzzle potential progress in several discreet diseases, housed historically in separate silos? Easier to monitor and limit innovation, and eyes, if all the problems are interred together? This, theoretically, would be doubly important because of churn, and...

With proactive patient involvement (not just reactive), it would likely make it more difficult for malign interests to exploit the patients. That's not to say groups like the BPS ilk wouldn't still spin, but helping erect safeguards is important to many like me. It's not just picking a horse...

Almost a quarter of a century back, the first of three RCTs for Lyme disease was conducted at the NIH. Many Lyme patients were highly skeptical and demanded a seat at the table. Despite continued patient misgivings about the protocol, the trial appeared poised to proceed. Patient blow back got...

So are state institutions like the NHS or NIH.

That is an oversimplification of what happened. Cleveland Clinic positive findings, among others, played a role. There was much going on. Irrespective of who leads the way, the most recent NIH fiasco a case in point. I'd rather patients have more of a role in the steerage; if something goes...

Most foibles possibly ascribable to patients can be ascribed to researchers as well. They each bring strengths and weaknesses peculiar to their respective places, each their own acquired knowledge and earned perspectives. Each their own respect for the adherence to the scientific method...

Lyme. Geez. I seem to recall some advocating psilocybin as well. I find even the suggestion appalling. If it's a spirochete making people sick, and like its cousin it's in brains, suggesting psychodelics as theraputics potentially damages in more ways than one. Oh, sorry @Mij , you've touched...