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Could you tell me which paper you sent her? I'm going to approach a local sports university for a 2-day CPET. Hopefully it will work out.. Also, where does the Steven protocol come from? Could you point me to that as well?

The only thing that I'm aware of that is more or less clear (I think) is the connection between stress and mast cells. Not saying that mast cells have something to do with mecfs, but they might. They likely have something to do with eczema and many other skin conditions though. E.g.: Human mast...

I haven't viewed at the evidence for placebo effect at all, so can't say much about it, but there are folks who think that there is something to it. I have great respect for Michael so I tend to think that there is something to it. It's just that the effect is quite small, but psychologists, of...

Definitely not, it's David Jameson. No doubt.

Very disappointing... That's why I think (I have already mentioned this so sorry if I'm repeating myself) that we will only be vindicated when we have a treatment that those regular doctors can prescribe and see with their own eyes how we actually recover. Without treatment, I have very little...

Yep. The funny thing is that even though I didn't enjoy sports too much, I always liked working on something, especially physically, even though I found it difficult and exhausting. E.g. doing ridiculous ammount of woodcutting at the summer house, etc, way beyond my capabilities. I don't know...

As someone has already mentioned, this thread likely suffers from some serious selection bias, both because of who responds to the thread, but possibly because the ones who are sicker (I think they predominate support groups) may have had more active lifestyles before getting sick (for whatever...

Ok, fair point, but you are still making that point in relation to the person in the article and we don't know if he's misdiagnosed. Maybe he is.

Yes, I do realize it very well, but it doesn't lead to this conclusion: "People who are misdiagnosed are going to find improvements from different things because they don't actually have ME". You're basically insulting all patients who find something helpful. I think that's very unfair. Where...

Many people find something that helps them improve and to say that it is because they don't have ME? I think that's a bit too far. E.g.: Probably the most common thing I see people reporting again and again that has helped is diet. I would never say that it is a cure or that diet was a 'cause'...

I don't think the tissue has to necessarily show sings of being diseased according to conventional standards. I think what should be looked at is how the particular virus could alter intestinal permeability, potentially exposing the intestinal bacteria to host immune system, or letting...

I don't want to be pessimistic, but it will take a long time... Take IBS. We already know that a big subset of IBS is an autoimmune disease caused by infectious gastroenteritis. There's even an FDA approved drug Rifaximin in US, which doesn't address the underlying issue, but treats some of the...

(bolding mine) Hm.. Let's see. When searching for "ME/CFS" on Pubmed I get 7874 hits Only 231 hits for "CFS/ME". 7967 for "myalgic encephalomyelitis" 7868 for "chronic fatigue syndrome" 5615 for "CFS" And as far as my personal experience goes, I have seen WAY more articles using ME/CFS, than...

Does anyone have an idea about main conference recordings? Website says: "Thank you for your interest in the conference. We will notify you as soon as the recordings will be available." https://www.fourwav.es/view/647/info/ It's taking quite a long time. I wonder if they will ever be made...

I think this forum would be a terrible medium for Sharpe, because unlike twitter, there's no character limit and he can't block anyone. He would have no chance with elaborate and well argued responses from members to his nonsense. That's one of the reasons why he's not here and will never be.

I wonder if they should've added an option for "It improved my ME symptoms" or something similar. I think there's chance that it could do that for some. Now it seems like they are just asking about IBS symptoms.

Can someone tell me if the conference was filmed ? Does anyone know anything about the future availability of recordings? I tried to email the organisers, and asked on twitter, but nobody replied.

Is there any evidence of that? CPET with decrease in capacity? I think some trials compared sedentary people to ME and I believe every single one show same or better results on the second day. But then if we add Light et al gene expression studies to those results, I think it becomes really hard...

They may be beginning to realise it slowly, but just refuse to admit it to themselves due to various reasons. I think they will never ever change their opinion on it, because that's what they believed all their life. It's almost impossible. His thinking is probably something along the lines of...

Agree 100%.