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I meant to add that the sleep I get doesn't feel like enough.

By ordinary standards I get enough sleep - approximately 9 hours a night for the last 4 weeks, over 8 hours before that. I think I sleep less in the summer, and I get insommnia if I overdo it in the day. My perception is that sleeping more doesn't help me cognitively, but insommnia can add to...

Such a shame. He might have been a good historian.

perhaps it reveals that he thinks it's all about him and not pwme

Members might leave the group in response to being better educated through awareness raising. Easy to say.

Wish I wasn't brassic A shame it came at christmas when money is tighter than usual or I could have given a second time. Still, there'll be other fundraising drives and we can donate at any time

That's interesting, I get that sometimes. When I saw that scene I wondered if it was possibly myoclonal spasms, which I get as badly as that on rare occasions, or a seizure. Now I'm not sure at all what was happening. It's good that they showed it in the film

@Invisible Woman 's descriptions are very familiar. eta - A lot of posts on the ME Moments threads (here and the classic ME Moments thread on PR) are examples of cognitive dysfunction.

Is there a reduction in the numbers of severe patients or just the ones they see? Any evidence?

@MErmaid My position is similar to Trish's. Have discussed this in more detail with anyone off this open forum? That's not to disparage you in anyway, perhaps it could strengthen your project and help you in what you want achieve. You mention Jen Brea, and I assume Julie Rehmyer and what they...

Short term verbal memory: I can forget what I'm talking about as I'm speaking. It can be as bad as forgetting the first part of the sentence before I reach the end. Sometimes I remember the first part of the sentence, but not a clue how to finish it. It's like trying to join matching magnetic...

Good! I hope they do this

Some schools such as my daughter's (a state secondary) have trained counsellors. A friend of mine who is a counsellor has also managed to develop a part-time paid position for herself at another school. I don't know how common this is, perhaps not very. I imagine different schools will adapt...

@MErmaid - good luck!!

What are we paying them for? Same as usual, buck passing.

I have some sympathy for view MErmaid but we may have different ideas about how to go about this and what direction to take before we even begin to get started. I don't know that we could do better (we couldn't include me)

I'm strongly in favour of supporting the needs of children and the most severe raised by @Amw66 and @Keela Too . They're our most vulnerable and should be able to count on the rest of us.

:) Thanks, Andy.

Surely the content of at least one of those 10 min speeches could have been sent before hand with the agenda. I may have missed this, if so apologies, but can someone confirm who all the people going from S4ME are?

I'm not on twitter; Has someone has pulled the drawbridge up?