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This quote from Dr Brown is good and it would great if there was input from GPs with ME in the training material for GPs.

I'm going to need to re-read this to absorb better what's been said when I'm fresher. In the meantime thank you to @Chris Ponting for taking the time to answer our questions. Thank you @Andy for your work on this.

Well at least he's admitting he's not much help eta: A good response from @Keela Too :

I've been thinking about this and I'm pretty disgusted with the BMJ to be honest, not because they didn't publish the paper, but because they accepted that mean and self indulgent nonsense as a review. I realise that reviewing for journals is done voluntarily and without remuneration, and...

I don't care about Ricky Gervaise or his joke; I've personally been subjected to worse and he's not important. It was a distraction tactic by the Minister.

As I understand it there's nothing to stop you writing to any MP you want, but they are under no obligation to take notice of your letter if they aren't your own constituency MP because they don't represent you. My guess is it would depend on the MP, the subject matter, their resources and...

If a bit extra money than NICE are prepared to offer for expenses makes the difference between having good patient reps and not (I'm thinking of funding for things like eg an extra nights hotel stay - that can make a big difference to pwME ) perhaps a fund patients can contribute to could be...

True! What I'm saying is it wouldn't have been (or still be) be nearly so damaging if establishment institutions hadn't failed in their oversight, or colluded with and empowered that model and the Wessely group. It suited them, still does, I should think, until they are shamed out of it. For...

He's very busy networking with all his contacts in high places trying to avoid any mud sticking to himself

I'm interested to know what happened but have been concentrating on the Westminster Hall Debate. How did it go? Will a transcript, audio or video of the proceedings be available at some point ?

deleted - too past it to be posting really, going to bed

To be fair to Sharpe not all of our problems and the lack of medical research can be blamed on PACE, but PACE and the ideas behind it have been extremely convenient for governments and other insitutions shirking their responsibilities

I think we owe some of the comments that were made in the debate today to parliamentary privilege, which was a good thing.

Agree with this - insitutional problems have made everything so much worse.

The fault wouldn't lie with Graham's video at all but there are people too ignorant or stupid or worse to understand it. At least one of those people would probably ask if Graham has read the paper. There's no hope for some people. Meanwhile the video's reach is growing - excellent - and we had...

Might it be worth pointing out so that others in the room hear?

There are a few places where I might nitpick but overall I think it's very good. I very much like the focus on the wide ranging institutional failure. I think instituitional failure is one of our biggest problems in that without it all our problems would have been addressed far far better long...

He doesn't seem to know much about what the MEA do all day

How do you find out who your MPs parliamentary secretary and senior advisor are and their contact details?

@Sunshine3 I'm feeling a bit tense about it too :hug: