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  1. Skycloud

    Michael Sharpe skewered by @JohntheJack on Twitter

    Cochrane still needs addressing
  2. Skycloud

    Michael Sharpe skewered by @JohntheJack on Twitter

    It's interesting just how many 'chums' SW seems to have. I don't necessarily expect that MGodwin'll be supportive, but he's been given links that counter PACE on a public thread - they're there for anyone to read - and the more the information is out there the harder it becomes for anyone to...
  3. Skycloud

    Michael Sharpe skewered by @JohntheJack on Twitter

    I find that if I click on the main body of the tweet I'm taken to that tweet and others in it's immeadiate thread - try that?
  4. Skycloud

    The Biopolitics of CFS/ME

    Dated 8th June 2018 in Science Direct, but I think it's fairly old with references seeming to be no later than 2011 that I can see. (edit to add Doh! it's dated 2013.) It wasn't always clear to me what the author was trying to achieve and I'm left with the impression that muddy waters were...
  5. Skycloud

    The Biopolitics of CFS/ME

    I may read this Thanks for the link to the full paper @Sly Saint.
  6. Skycloud

    Michael Sharpe skewered by @JohntheJack on Twitter

    I appreciate that Mike Godwin has expressed an interest in finding out more. If he's serious that's a significant time commitment.
  7. Skycloud

    Faecal transplants could help preserve vulnerable species

    But surely a koala's diet is also learned from it's mother so why would it start eating different leaves if it doesn't recognise them as food?
  8. Skycloud

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    @Alvin MPs are representatives of a geographically constituency so those of us in the UK have /should write to our local MP.
  9. Skycloud

    The ME Show

    Thank you again @Gary Burgess another really good episode, you're doing a great job. It's one to bookmark for sharing about what this is like to live with. I'm rather fond of the intro music now.:) Thank you too @Trish :hug: (had to hug you after hearing you speak) and thank you too to Hannah...
  10. Skycloud

    Briefing paper for parliamentary debate.

    The evidence for causation is not there and it's not helpful to say anything that implies anything other than that the causation is unknown. I believe it makes us look not serious if we do. Consequently I'm not happy with the phrase from the paper that's under discussion so I'm with those...
  11. Skycloud

    Forward ME Group minutes 1st May 2018

    @chrisb Alternatively you could email as suggested by Russell, and make it clear in your email that your own email and any response will be public eg published on S4ME . More direct than requesting people join this forum that may not want to. eta - you could take the same approach with AfME
  12. Skycloud

    House built on old golf course - yes or no ?

    Two house warming parties! Best wishes to both of you with moving.
  13. Skycloud

    Letter from parents of children with ME to paediatricians in the UK

    I have several problems with this but I don't want to post too critically about it. There's clearly been a lot of work gone into this out of justified desperation and anger. It's good that it is referenced. I hope it has a good effect wherever it goes, or at least that doctors give it the time...
  14. Skycloud

    ME Association: ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP

    My MP is on a select comittee and has signed, so there doesn't seem to be a problem with comitees. edit clarity
  15. Skycloud

    Michael Sharpe skewered by @JohntheJack on Twitter

    It was just a thought that occured to me. Sorry can't elabourate - I'm PEM'd with brainfog; not trying to be awkward.
  16. Skycloud

    Michael Sharpe skewered by @JohntheJack on Twitter

    I think it's best to stick to the science and other objective facts rather than motives and anything like ad hominems. Just a general comment from reading the thread; not directed at anyone in particular.
  17. Skycloud

    Briefing paper for parliamentary debate.

    What Trish just said :)
  18. Skycloud

    Hospitalized Patient w/ Severe ME Looking For Treatment Guidelines

    I wonder whether many people with ME do complain. I can understand why some would choose not to. Raising awareness sounds like a good idea to me @Samuel, have you contacted ME Action? Perhaps it's worth starting a thread about complaining.
  19. Skycloud

    Award-winning essay of the NJME/CFSA 2017 Medical Scholar Program: "A Narrative Synthesis for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"

    My thinking too I wonder who judged the competition. It'd be good if the student also received an informed critique of their essay and directions to further reading.(perhaps they did) It is a bit of a muddle of an essay in places, even I can tell that, but it's good that new medical students...
  20. Skycloud

    HPV vaccination and risk of ME/CFS

    Is there an antivax undercurrant? Genuine question. I really don't know if Dr Malcom Hooper is anti vax or has ever said anything else that sounds antivax. Generally speaking I think it's a good question to ask as adverse reactions have come up in the newspapers and elsewhere, at least in the...
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