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It is a really poor statement from them. Firstly they describe it as a position paper when really it is a one page statement with no attempt to relate their beliefs to the scientific literature or to try to justify what they are saying. This comes across as making them look weak, lacking in...

I think there could be studies of the harm done by GET which would be very worthwhile if NICE continues to recommend it (or even doesn't come out against it). Currently there is very little in research in that direction - one of the things that those backing GET keep arguing is that its only...

Given things like pacing and PEM I've always thought the 50% doesn't represent a good concept. It doesn't seem to cover the notion of an imparemtent in the form of if I do X then I won't be able to do {x,y,z,....} for a time t (with bounds) but if I don't do i where i is from {x,y,z,.....} then...

I think one of the important things is that ideas of what imparements matter are driven from patients (and carers) rather than any academics. That way the things that really matter come across - also temporal issues around imparements need to be raised (for example, the inability to plan to see...

I think that is an interesting idea. I wonder if there could be an addition to the DecodeME project (with separate funding) that looked into these issues taking advantage of the cohort that is being developed (and even diagnostic information to get agregate levels and types of impairment). I...

The things that immediately come to mind are: - Via contacts with local support groups. I wonder if a network of people involved with local support groups could be formed such that getting information distributed (assuming a one or two people in each group are active) - Via Clinics/GP surgeries...

To give an example of what happens when isolation isn't enforced - Iceland seems to have a problem where 2 french tourists tested positive and failed to follow isolation proceedures and its reported to have lead to more than 100 infections...

If he was a business man he would be praised for his effective sales strategy rather than be called a malingerer.

When looking at the criteria there are the symptoms that must be included or a certain number. But the other thing work consideration is the exclusion criteria in terms of co-morbidities. One factor that I think Oxford talks about is that fatigue needs to be the primary symptom so if people...

A shame they needed to but yes.

I thought this was an interesting twitter response.

There was also a collegue of Chris Pointing (from Edinburgh) at the CMRC conference who was interested in B cells and starting to think about ME.

Its 2mb at the moment

Some are saying that the excess death rate is a more accurate way to look at the figures given recording problems. Deaths are recored as Covid-19 deaths if the person tested positive so no tests no record - which could have a big effect on reported numbers. I wonder what type of varience would...

This was an article I saw https://www.vox.com/2020/7/12/21321653/getting-covid-19-twice-reinfection-antibody-herd-immunity

I did see one article where there seem to be a small number of well documented cases of reinfection. I think they were talking about 3 months but where someone was tested positive with symptoms, got better tested twice with negative results and back to normal then got symptoms again and positive...

The only interesting thing from such trials would be to compare the different response biases that they measure with different diseases.

It can be years!

I can see the psych lobby trying to grab this money for badly run cbt and get studies.

Support for the motion here https://www.sinnfein.ie/contents/57170 From Chris MacManus MEP @Tom Kindlon I don't know if you keep a list of Irish MPs/MEPs who make sympathetic statements on ME if you do here is one.