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  1. Adrian

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    There is an issue in that I've not mapped s4me.info to www.s4me.info. So they are different URLs and recognize as such by browsers (having realized I hadn't done this originally I decided not to since it could cause people some password issues (depending on how browsers remember passwords).
  2. Adrian

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I think that is really important and will probably need tobe highlighted multiple times.
  3. Adrian

    UK: Priority Setting Partnership for ME/CFS

    I think there is always a trade-off between doing things like this or not. One of the points made was around it help in arguing for more money from the research councils who take the output seriously (hence worth doing). But there is always the danger that bad research will be the outcome (or at...
  4. Adrian

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    I think with John Prescott they always went through an editing process to make the meaning clear.
  5. Adrian

    House of Lords: Govt discussions with NICE on ME/CFS (Main Chamber) Tuesday, 12 October 2021

    I think some people still do (its still used)- just not pregnant women.
  6. Adrian

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I'm sure they saw opportunities there. But I think there can be other issues in terms of copeing as well as depression.
  7. Adrian

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I think the notion is it is used for psychological support to help patients cope with the issues of chronic illness - however, including CBT and not a general psycological support seems strange to me as it is choosing one method (and a cheap one!). But if it is really about copeing with...
  8. Adrian

    British Psychological Society: Development and promotion of valid psychological screening to predict chronicity, post COVID-19 infection, 2021

    Merged thread Coyne has written a blog about the British Psychological Society's attempts to introduce psychological screening for long covid Just Say “No!” to Psychological Screening to Predict and Treat #LongCovid | by James C. Coyne | Sep, 2021 | Medium
  9. Adrian

    (Daily Telegraph) “How I became a target for the ME militants” by Dr Michael Fitzpatrick

    I suspect it is more about repeating the story so that other doctors don't question the RCP trying to block the NICE guidelines. If they think it is all down to the nasty patients they may not ask questions of the RCP's leadership over belief in following the evidence and the flawed approach of...
  10. Adrian

    (Daily Telegraph) “How I became a target for the ME militants” by Dr Michael Fitzpatrick

    I think it says something that they feel the need to roll out such stories at this time. Given his links to the RCP, SAS I would assume this is part of a campaign to try to discredit patients (or generally non-believers). I guess it has worked for them very successfully before,
  11. Adrian

    (Daily Telegraph) “How I became a target for the ME militants” by Dr Michael Fitzpatrick

    It is interesting that the former RCP (revolutionary communist party) members seem to have very similar views to those being expressed by the other RCP (royal college of physicians) at least when it comes to ME. Also worth noting that Fitzpatrick is still a trustee of Sense about science...
  12. Adrian

    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    Its also a big leap to suggest that if GET were to be safe in a trial then it would be safe in clinics - the training and supervision will be very different especially with widespread role out.
  13. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I was never interested enough to read his earlier blogs. But I did get the impression that he was jumping around ideas looking for the latest thing - perhaps its a good thing he didn't see stuff on spinal surgery. To me its about making professional criticism not personal - and I guess some of...
  14. Adrian

    OMEGA AGM & Karl Morten - latest Biomedical Research into ME from Oxford, Sept 18th 2021, 2pm UK

    I was wondering that as well. Also there website requires quite a few clicks to get through to the actual donation piece.
  15. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    What I really mean here is that he is someone who is involved in pushing for evidence based medicine but pushing particular treatments based on his personal anecdote. He did start off with personal stories in his blog but moved on to a press tour talking about thinking yourself better. I don't...
  16. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I do think it is useful to point out the irrationality of his argument. He is meant to be an expert in evidence and he is talking complete rubbish and he should be challenged on that - in a polite way. I think a lot of the comments were politer than many academics would get if they stand up in a...
  17. Adrian

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He doesn't by name but it is implicit in what he is saying wrt the group and therapist in norway as well as some of his comments.
  18. Adrian

    Graded Exercise Therapy for Patients with Chronic Fatigue Syndrome in Secondary care: a benchmarking study, 2021, Smakowski, Chalder et al

    It seems worse than that the appendix seems to have more numbers in it For the CGQ they started with 91 but at discharge had data from just 33 with 25 at long term followup Similar for the other figures
  19. Adrian

    Graded Exercise Therapy for Patients with Chronic Fatigue Syndrome in Secondary care: a benchmarking study, 2021, Smakowski, Chalder et al

    Some of the figures are interesting Graded exercise therapy for patients with chronic fatigue syndrome in secondary care – a benchmarkin (tandfonline.com) Number of patients coming into the clinic 1506 1240 had CBT (note that in PLOS ONE: Adaptive Pacing, Cognitive Behaviour Therapy, Graded...
  20. Adrian

    Will it ever be reasonably safe for PwME to go back into society, post-Covid?

    I'm told that its hard to get younger people vaccinated at home due to the AZ vaccine not being offered in the UK and handling issues with the other vaccines
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