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I think Crawley tends to use the NICE criteria rather than Oxford.

I did wonder as the journalist was contacting David with questions, interviewing him, criticizing his work and photographing him if he wondered did that fit the definition of harassment that he is using in his story?

That is the difference between knowing and speculation. She may well have observed something in some patients but there is not a study that can confirm any suspicions.

Depending on the date she wasn't the main doctor for the service because the had a research fellowship which enabled them to hire a doctor to free up her time for research. When we saw her she said she only saw the difficult cases. That would have been quite some time ago I think 2011.

I assume new service provision is done on the basis of some evidence or because others are successfully operating such services? In Crawley's case it feels like this was a new idea for a service rather than building one on research literature. I would say new service design is research in these...

It should be said that schools can put a huge amount of pressure on parents and make various threats where a child is no attending well. To push this exercise through the schools is coercive and it will have been hard for parents and children to refuse (and thus informed consent is not really...

To me there is little point in discussing a video that none of us have scene and isn't really relevant to the community. There may or may not have been threats but they come from individuals not the ME community. I don't think any of us want violent solutions I've never seen any support in the...

I was thinking that. They are so used to being believed that they thought referring to a story in the guardian and collecting quotes from PR would be sufficient. However, if their lawyers were not on top of things that is pretty damning for the legal profession as they came from a top (and...

I think we only have parts of stories around this and I could speculate but it would be pure speculation and so not worth doing. I think we are now in a position where the CMRC is a positive thing for patients. I really think stories such as the one this journalist is trying to write could...

Putting the IRAS ref into google gives an uninformative page https://www.hra.nhs.uk/planning-and-improving-research/application-summaries/research-summaries/responses-to-physical-exertion-in-chronic-fatigue-syndrome-me/

Holgate is the chair of the CMRC and Chris Ponting is the deputy chair. I don't know much about Holgate's background but I think that Chris is an excellent researcher with interesting ideas around ways to explore the biology behind ME. The whole CMRC has changed in nature in the last year or so...

I'm hopeful we are in a slightly better position than before where the press does have a bigger range of stories. But I think such reporting does reinforce prejudice in peoples minds and I suspect particularly some in the medical profession who don't believe in ME, dismiss it as something...

I think there is some research on the use of anti-depressants for chronic pain https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2729622/ But I don't remember them being suggested for pain associated with ME.

Its also an argument that seeks to disenfranchise patients basically by arguing that only doctors have the right to interpret medical research. This basically plays to a protectionist agenda for those doctors who can't defend their work.

So another open label trial with subjective outcomes being hyped in the press. The press story didn't report "there was no significant change in physical symptoms or function."

The paper referenced in the article is here https://bmcmedicine.biomedcentral.com/articles/10.1186/s12916-019-1253-5 Clinical and economic outcomes of remotely delivered cognitive behaviour therapy versus treatment as usual for repeat unscheduled care users with severe health anxiety: a...

We should remember that there is a big industry being build around MUS and the evidence is very very dodgy and also refers back to PACE. Its all wrapped up in getting money from the government to fund dodgy mental health strategies. With MPs questioning the research in one area perhaps they will...

I wonder if they want a new article to point to when Bristol University investigates how they have failed to get ethical approval for some work and with other work dodgy things are going on. When the information tribunal happened I seem to remember they tried to point to a guardian article as...

You are a doctor since you have a doctorate. 'Doctors' only get the title as a curtesy and should only use it whilst practicing.

I think the argument should always be one of the way they are attacking a minority group of very sick patients. There maybe some nasty comments but it is not up to very sick patients to police the internet. The way they attack ME patients wouldn't be an acceptable way to attack any other...