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@mango i would go back with ‘Thank you for passing it on to the committee, when can I expect a response to the point raised?’ ETA they are making it seem like being open but at every point giving a minimal response. In this case the reply implies that they hope the fact that the point has...

That’s a non answer

Shambolic

shoddy work by the civil servants

Coverage of the attempt to get Long Covid in key workers classed as an industrial illness. If by some miracle they were successful with this it would be Wessely & co’s worst nightmare. Long Covid pay decision could take a year BBC News. https://www.bbc.co.uk/news/uk-57146120

That makes it doubly bad they dodged that point, they know they have messed up just trying to get away with it. Unacceptable!

It might be worthwhile sending them links to Evelien when she went to the European Parliament and to Emma speaking to the Scottish Parliament petitions committee

I would simply say Thanks very much for your answers to my questions however I would also appreciate your response to this important point i raised which wasn’t covered in your email,

If I had received this response I would send a follow up email about involvement of people with ME @mango One of the downsides of raising a few different points in the same letter is the likelihood of low integrity people trying to avoid responding to difficult questions. I would follow up...

My surgery have posted on Facebook that face to face appointments are available but you need to have a telephone consultation first. In theory this makes sense to me but I haven’t actually used it.

My only experience with internal tremors seemed to be related to taking pregabalin which it turns out according to the information leaflet in the packet has tremor as a common side effect. I’m at the less severe end of the spectrum of ME severity so this won’t be relevant to folks with more...

Ah ok but the website comes across like an organisation to me.

A bit odd to have an ME organisation with alliance in the title that nobody on S4ME has said they’ve heard of when so many here have so much knowledge of the world of ME.

And just clarifying that ‘giving a timeframe ’ in this case was saying yes to a question put to elicit a timeframe.

Had my second Pfizer 4.30 yesterday. Last time I didn’t notice anything that wasn’t PEM other than feeling of having been punched in the arm. This time I have a noticeable headache but and the arm feels more sore than last time I think. But paracetamol is dealing with the headache fairly well...

@Hilda Bastian now less than 3 weeks to the end of May is the progress report still likely to be this month?

Cant read it but I clicked through to give you the traffic :thumbup:

Scientific Adviser :rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl::rofl:

Yes. Don’t know why they don’t just use black text the contrast on that grey isn’t strong enough

Like a record with the needle stuck......