Search results

How tedious- the word salad has been tossed yet again

This thread is no longer fully moderated.

:rofl:

I was just concerned about pointing any ally to a website where they might find negative content about ME. Even if the U.K. SMC had useful general content about understanding science research I would never link to it.

Are the NZ SMC linked to the U.K. one?.

Seems to me from re reading this thread that @Sly Saint has hit the nail on the head. BACME people need tto say that they have moved on from deconditioning as perpetuating ME. Until that is made clear we can assume everything they say about deconditioning is fudging.

The Aussies are up to this rubbish as well then :mad:

Would it not be linked to hospitalisation? if you’ve been hospitalised 1&2 would apply if not and you have prolonged illness following a less severe initial illness 3 would apply?

Excellent letters @Robert 1973 and @Andy thanks for your efforts.

I don’t have really bad pain so I get by with paracetamol. I also take CBD at night. I have low dose pregabalin on my prescription but stopped taking them 2 years ago due to side effects exceeding benefit. If I have a flu symptoms episode the paracetamol wears off before I can take...

Yes I take the 1mg too

Agree this is an excellent point @Andy. I think it makes sense to show it can be done. And I feel that MHRA are unlikely to do anything about reporting of harms from physical or psychological therapy ‘merely’ for ME as that would set some kind of precedent opening them up to massive numbers...

Ok so the the Parsons based beliefs sum up as We like the “good” patients who are happy to gaslight themselves....... I wonder if the study participants were aware of the perspective being taken by the researchers?

So if he’s been doing this why couldn’t he sort out the PACE data that wasn’t possible due to being retired.

I take over the counter melatonin I buy from the USA I have to be careful with or preferably avoid anything sedating as I really get knocked out by them and also the hangover persists

Is this just a glorified let’s throw an SSRI at it to see if it sticks. Will it be tryclics next. Is there genuinely any science behind this.

Obviously depends who’s involved and what the eventual content is but looks like a positive development.

Shoddy effort. Hopefully he will read the whole document with Jonathan Edwards and Nina Muirhead’s thorough contributions and actually learn something about ME.

Stick that in your business model Parker

Great progress every stage is a fresh battle once the guidelines are in place the next battle will be about how the organisations within the NHS actually deliver care for people with ME based on the guidelines as set out by the Committee. There will be attempts to do a facelift over...