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  1. NelliePledge

    2021 Pan-Europe ME Patient Survey (EMEA)

    I think it says on passports United Kingdom of Great Britain and Northern Ireland
  2. NelliePledge

    Rapid fatigability or a lower amount of available energy - the same thing or different?

    In my opinion whatever you say healthies will say me too whether the word is fatigue, energy or ill. i think there is definitely something about energy but it is so closely tied up to levels of symptoms pain, fluish feeling headache sore throat or whatever it is. I don’t get up until I have...
  3. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    COPE what a waste of space that is - definitely something the Science Select Committee should be looking at. If COPE can’t actually do anything it should be shut down and replaced by a regulator which can act.
  4. NelliePledge

    Long Covid & ME/CFS: Information & Management by Dr Charles Shepherd

    Best let MEA know via @Russell Fleming
  5. NelliePledge

    Who is Simon Wessely?

    Oooh an even more altogether eminently eminent Eminence Presumably he’ll be getting out the magic suit for the parade
  6. NelliePledge

    Vitamin D and ME

    I was told this as well by a Dr who is knowledgeable about ME. Vitamin D was literally the only thing my GP followed up after I’d had my consultation with the ME Dr. I’m pretty certain my result was around at 70/75 at that time which the GP said was perfectly ok despite being towards the...
  7. NelliePledge

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    We don’t know yet do we given we are only one year on there could be people who are right at the least severe end who don’t even see themselves as having LC because they are pushing through. They could have an existing diagnosis that is overshadowing LC. There could be more people eventually...
  8. NelliePledge

    ME Association Statement on Exercise in ME/CFS and Long Covid, April 2021

    https://www.s4me.info/threads/me-association-magazine-summer-2019.10788/
  9. NelliePledge

    Weʼre raising £35,000 to Continue Vital ME Research, Keith Geraghty, 2021

    To be honest I didn’t put in to DT this time as he was almost on 100% I did a second one to KG instead Pleased both have hit the targets.
  10. NelliePledge

    Discussion of suggestions for the ME/CFS Priority Setting Partnership, deadline 5th July - extended to 7th July.

    Thanks @Andy i was hoping that would be the case. So at least in the U.K. replication will be no reason to delay pursuing any useful findings.
  11. NelliePledge

    Discussion of suggestions for the ME/CFS Priority Setting Partnership, deadline 5th July - extended to 7th July.

    Toddler question - apart from seeing if findings are similar in a different gene pool is there going to be a need for replication of GWAS findings before they can be widely accepted by the scientific community?
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