Search results

I think you’ve written the skeleton of a @dave30th blog.

They keep churning out the tripe.

Oh. @Russell Fleming and what’s the likelihood she would take feedback on the format?

And then there’s Facebook :wtf: Makes me feel so lucky we’ve got S4ME

Well you never know if they’ve got any common sense at all it’s possible that with Long Covid in the news they might have had a lightbulb moment and thought the course might be useful.

Posts about the NHS England announcement about Long Covid clinics have been moved to this thread https://www.s4me.info/threads/uk-nhs-england-online-tool-and-clinics-for-long-covid.15790/

Liaison psychiatry teams all round the country no doubt offering their services....... i hope there’s going to be some some actual testing and medical treatment. Definitely will be interesting to see how this turns out in practice.

I get out of breath very quickly if I have to walk uphill or stairs. I always put it down to being overweight but I can go a lot further on the level without gasping. I think I’ve always been a shallow breather and was absolutely hopeless at cross country running at school - I had to resort to...

Maybe point him to S4ME?

Moderator note: Please be mindful of Rule 12 - No non-ME politics. Posts stating facts about President Trump will be allowed, but please avoid making any comments that could be seen as political. The thread has been reviewed and some breaches have been identified and dealt with.

Thanks @ladycatlover i will do that eventually just don’t have the brain capacity to tackle it until my refurbishment project is finished. There’s so much physical and cognitive energy needed for decision making and moving stuff around in the house. you might need to remind me next summer...

Excellent thread @Snow Leopard. I have things I would love to be spending my time on. I have some milder ME days when I can manage to do a lot more than on my worst moderate ME days. In theory I could do some stuff that would improve my quality of life I’m not even thinking at a wish list...

Seems like minimising any time outside home makes sense in those circumstances. And as for the cruise industry getting going again I’m speechless.

I don’t know the practicalities for arranging the meetings, possibly it is Carol Monaghans office. Five days seems very short notice. Especially if the APPG is relying on PWME to mobilise to get invites out to MPs. Maybe it’s normal for APPGs? Do MPs get notified by an invite from the APPG...

I had gradual onset, I had repeat episodes of laryngitis, swollen glands and flu type symptoms over a period of 3/4 years when my health deteriorated noticeably but not acutely. I continue to have sore throat associated with PEM, swollen glands only occur now when I am at my worst. Since...

If you were picking between long covid and an ME diagnosis I think a lot of people would stick with Covid. despite the issues about perception of it being mild in younger people it has the advantage that 100% of the public have actually heard of Covid. How many of the public have ever heard of...

A post from this thread has been moved to a new thread about the ThinkGP programme. https://www.s4me.info/threads/australia-and-new-zealand-me-cfs-medical-education-thinkgp-online-program.17080/#post-260409

Oh well done @Robert 1973. I mean she’s got 96k followers :thumbup:

Well in reality has to be long covid as she doesn’t appear to have enough understanding of ME to be giving an accurate description of it But yes good point.

I can understand why all these people are talking in terms of recovery and rehabilitation because why would they think any different. None of them who were previously healthy including the GPs have any specialist understanding about what it’s like to have a long term post viral illness...