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  1. NelliePledge

    The Royal Swedish Academy of Sciences' report on long covid

    :thumbup:
  2. NelliePledge

    Sarah's adventures in blocking out light

    Tell him if he doesn’t agree we ll be wanting a meeting with him to explain himself :D
  3. NelliePledge

    Sarah's adventures in blocking out light

    Maybe telling him about that option as well will persuade him towards the stick on stuff as low impact??
  4. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    So we will likely know something by the end of next month?(in 32 days time)
  5. NelliePledge

    Discussion of suggestions for the ME/CFS Priority Setting Partnership, deadline 5th July - extended to 7th July.

    I would be disappointed to see studies into gaslighting of ME community take priority over the stuff Milo has listed 1-8.
  6. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    When will that start?
  7. NelliePledge

    The relationship between psychosocial trauma type and conversion (functional neurological) disorder symptoms: a cross-sectional study, 2021, Morsy

    What next, problems with your neighbours associated with cognitive symptoms....
  8. NelliePledge

    Cochrane Review: Cognitive behaviour therapy for chronic fatigue syndrome in adults, 2008, Price et al

    Well done @Caroline Struthers on your persistence Shambolic by Cochrane that it has taken so much pushing from you to sort out something that could easily have been snagged within 24 hours of it being drawn to their attention. Of course ideally it wouldn’t have needed to be drawn to their...
  9. NelliePledge

    Weʼre raising £35,000 to Continue Vital ME Research, Keith Geraghty, 2021

    Donated and pleased to see the total going up now on 68% £17,148
  10. NelliePledge

    BPS attempts at psychologizing Long Covid

    Nearly spat out my cuppa :rofl::rofl::rofl::rofl::rofl::rofl::rofl:
  11. NelliePledge

    Cognitive and emotional variables predicting treatment outcome of CBT for patients with medically unexplained symptoms.., 2021, Sarter et al

    yes it’s hard to believe that people pushing this catastrophising idea take ME seriously enough
  12. NelliePledge

    Let’s end the stigma of psychosomatic illness The Times (London) 22/04/2021

    Interesting this is published on the same day as the ‘anonymous doctor’ invective in the Spectator. https://www.s4me.info/threads/functional-neurological-disorder-‘the-most-common-condition-you’ve-never-heard-of’-bbc-article.19940/#post-340307 Ostensibly coming from different perspectives but...
  13. NelliePledge

    The biology of coronavirus COVID-19 - including research and treatments

    I read it that they are just starting to look at this and the article does say they might not find anything so I agree the headline is misleading. If it said search for instead of plan for.......
  14. NelliePledge

    Cognitive and emotional variables predicting treatment outcome of CBT for patients with medically unexplained symptoms.., 2021, Sarter et al

    German researchers on the MUS bandwagon, one is based in New Zealand
  15. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    Thanks to you and the team @Andy, obviously tech issues happen :banghead: i appreciate the thought gone in to making the information as accessible as possible.
  16. NelliePledge

    Editorial: Lancet Psychiatry: "Trust and transparency"

    https://www.thelancet.com/lanpsy/about The Lancet Psychiatry editorial team @Sly Saint so presumably one of those 3.
  17. NelliePledge

    Functional Neurological Disorders (FNDs) in the media

    @dave30th
  18. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Ok so there’s a four month timeframe to expect a progress report ie up to 18 months since the original announcement. I believe it was expected the whole process would take 2 years.
  19. NelliePledge

    Understanding, is it necessary in every contact or friendship?

    What a relief @unicorn7 :thumbup::hug:
  20. NelliePledge

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Good practice in complaint handling is to tell people what the process is. Not surprisingly the BBC are playing very defensive cricket style
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