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Thanks so much @Andy

people with ME are at vastly different levels of engagement with the ME Community some live eat and breathe it so are aware of most things going on some who are actively engaged take particular stances or take on board a particular approach to ME which means they disagree with a lot of stuff...

May be of interest https://www.bbc.co.uk/news/health-50821327

Isn’t Edinburgh where the FND people are?

I would imagine most celebrities affected by ME are going to go to private places like Optimum and adopt the positive mental attitude think yourself better, steps to ‘recovery’ beliefs. Not helpful in explaining the reality.

@Robert 1973 John Siddle the ME Association press officer should be able to advise.

Need to make sure you’ve got the appropriate size cuff when you order.

It would be a pretty good idea I think. If people don’t want to give their contacts they could be asked for the first 3 digits of postcode. That way areas where people aren’t coming forward can be identified so more work can be targeted at reaching people in those areas. Eg in my current city...

I hope attendees take the opportunity to speak to her about the exercise review

I’ve got a Moron as well ;) Works ok for me but..... if it seems higher than usual I do what they do in the surgery and go best of 3.

And valcyte?

Isn’t it more appropriate to simply give numbers rather than turn them into percentages 1 out of 2 gives 50% but one person who reckons they’ve improved is one person.

So the people working on the sequencing side of this have been told to work on this ‘stuff’ rather than on helping solve actual diseases. What a complete waste of valuable resources.

Right. And all excess starch/sugar is just turned to fat so it’s definitely not a simple question of reducing fat intake.

Yes definitely still indulging once in a while. When I was doing really well on cutting out processed carbs I would still eat a portion of dessert cake etc every two or three months at family or friends get togethers. Birthdays Christmas. I had really managed to get it so it was an occasional...

In Victorian times food was adulterated with all sorts of dodgy ingredients to cut costs. https://www.bbc.co.uk/news/uk-25259505Manufacturers will use whatever they can get away with - hydrogenated fat, high fructose corn syrup etc etc these highly processed ingredients in junk food do not have...

John Siddle is the ME Association press person

Was trying to google to find this years debate. this debate from 1999 came up I read the opening which was by Tony Wright a well respected former select committee chair. Very interesting and possibly of use in future advocacy with current MPs to show how little has changed in 20 years since...

John Hayes MP - interesting that ME gets a specific mention. He wasn’t one of the gang of 5 who made the request to the backbench business committee so not right at the forefront but wondering if he was one of the 40+ who spoke in the debate?

Seen on Twitter ( admittedly on parody Boris Johnson account but it is true ) Nicky Morgan is in fact staying in politics going to the House of Lords - Baroness Morgan - and at least for the time being remaining in the Cabinet.