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  1. NelliePledge

    Functional neurological disorder: A practical guide to an elusive Dx, 2021, Clemente Fuentes et al

    Perhaps it should be a requirement for all psychosomatic based papers to be published in all caps it seems very appropriate.......:sneaky:
  2. NelliePledge

    What are these second-long 'surges' I'm having before sleep when crashing

    I have something when tired but wired when the electric buzzing uncomfortable feeling in my body wears off. it is like a wave of something flowing through my body for a few seconds and the bad feeling goes and I can sleep. This only happens (or is noticeable) when the wired feeling is there...
  3. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Dubious differentiation between withdrawal and retraction But hey if Cochrane went for withdrawal that would still be a positive result
  4. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I read that as referring to cognitive difficulties
  5. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Retiring some pages on a website can be done same day if the will is there to take that decision the willingness is the problem isn’t it
  6. NelliePledge

    Patient Access App article on CFS

    For a start no mention in the article of severe/very severe Also pretty poor that references to Reverse Therapy are in the article because the woman who wrote it reckons it helps her. Where is the balance on that......
  7. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    And because the process is clear as mud im not sure what we are actually currently waiting for..... It appears to be ‘updating some things’
  8. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Possibly I’m being grumpy as it is the wee small hours but this process is as clear as mud to me.
  9. NelliePledge

    Multiple Sclerosis and ME/CFS - similarities, differences, misdiagnoses

    The information the ME Association have on their website about differential diagnosis (taken from the Purple Book). is here https://meassociation.org.uk/about-what-is-mecfs/diagnosis/#Part%207
  10. NelliePledge

    What is in a name? Autonomic imbalance and medically unexplained symptoms in Taiwan, 2021, Chen

    Equivocation. Yes indeed that’s the modus operandi of these psychosomatisers.
  11. NelliePledge

    Trisha Greenhalgh on ME/CFS and Long Covid

    Already dealt with
  12. NelliePledge

    Once-Weekly Semaglutide in Adults with Overweight or Obesity, 2021, Wilding et al

    I don’t manage 15,000 steps in a week, probably 10 days, so it puts a LOT more pressure on the input side of things. I had a period a couple of years back when I lost 3 stone without any increase in steps. I maintained it for quite long time. I’ve put weight on over the last 18 months. I...
  13. NelliePledge

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Keeps digging himself further into the BPS hole
  14. NelliePledge

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    Great idea. This topic definitely needs highlighting. :thumbup:
  15. NelliePledge

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Wow. Very powerful @Joan Crawford
  16. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I wasn’t on the technical side but I was involved in writing content and making it understandable for general public. If there is not a technical solution the backstop is always a simple option of doing a message on the same page above the text. We had experience of doing changes that had to...
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