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No probs i did this as part of my old job so every page I go on I’m spotting issues can’t help myself good to be a bit useful :thumbup:

I just did it by eliminating a couple of things for a couple of months then seeing how I do when I eat them again. Wheat and cows milk. I definitely notice when I eat wheat so avoid it as much as possible. I think cows milk is less of an issue than wheat but I feel goat milk etc is a better...

Looks good in terms of content a couple of suggestions in terms of useability. Looking at the what is ME section it is quite a lot of scrolling to get through it to find particular topics. If possible it would make it easier to navigate if the contents list had hyperlinks to the relevant...

Which given how shallow the beeb health reporting is may be sufficient to influence a change of attitude?

Yet more BBC web coverage on Lyme. This interests me is it indicative of a change in attitude at the beeb? https://www.bbc.co.uk/news/health-49344772

Yes @ladycatlover ive been having person centred counselling for years - way before I got ME diagnosis and I wish everyone with chronic illness especially ME could have access to this support.

Not aware that any of the other well known Drs who see ME patients in the U.K. use this test, or indeed any of the GPs who will be going under the radar. Their diagnoses and reports will also be being used for claims for benefits from DWP and/or pension schemes. I don’t think Dr Myhill has a...

Is there any genuine point of difference between CBT and ACT or is it just changing the packaging to shed the growing evidence under the CBT description that “the product” is ineffective. Wrap it up in a new box and get the commissioners back on the hook.

Don’t think this has been posted article in the sun last week about severe ME link is to ME Association website https://www.meassociation.org.uk/2019/08/the-sun-trapped-ive-spent-six-years-in-a-dark-bedroom-after-virus-triggered-me-at-16-but-docs-say-its-all-in-my-head-09-august-2019/

I have no respect for this newspaper whatsoever - not from Liverpool myself but it was appalling on Hillsborough. However I decided to read the article and agree that this is a positive development. 1. People who read the Sun are just as entitled to get help with health as anyone else. 2...

Given that the whole article has been posted on this thread there’s no reason to assume that people were only commenting based on selective quotes. As someone with gradual onset ME your comments about not getting up just don’t reflect my experience. I was undiagnosed for at leas 8 years...

Or I’ve heard people who’ve had ME for years suggesting to people with acute recent onset to slow right down and rest as much as possible to not put at risk any possible chance they might have of spontaneous remission/recovery.

Good article

:sick:I really hate this pseudo intellectual way of writing that some academics use.

Been taking the pregabalin quite a bit recently and getting shaking in the mornings which I don’t get at all normally. I’ve just discovered that tremor is a common side effect of pregabalin. I’m swinging against pregabalin again and thinking I need to give ALA a try. Just wondering if you’re...

Right but surely there comes a point, maybe coming up to retirement or when you change to a different team, where you just want to cut through the bull.

About time some of them spoke out

Any chance you can post a link?

Well they’re doing that advocacy project in midlands and south west Which sounds like it might actually be useful. Supporting people getting access to services etc. https://www.actionforme.org.uk/advocacy-service/

Yep is he saying he was avoiding getting more active? I’ve never heard anyone say they were doing that it’s always about having overdone things.