Search results

Is that @ Joan Crawford speaking.

This was definitely highlighted last year. Don’t seem to be listening.

What evidence is there that any people with ME whose energy levels improve are being excessively cautious about increasing activity? My assumption is that it’s likely to be the opposite

The trouble is so many people talk about their own experience without thinking or understanding the bigger picture. On a Facebook post by a random person with ME that’s understandable when you’re chair of ME Association not so much. To me the comment “no matter how I feel I always get out of...

Like a mushroom he pops up everywhere https://www.bbc.co.uk/news/world-asia-48850490

Shared to local Facebook group. We had a display at Millions Missing with a white coat with all the negative comments written on it. My personal experience is relatively minor but I was laughed at for asking if I might have Fibromyalgia because “you don’t get a sore throat with that”. I...

My eyes are pretty good and the issues I have can be attributed to being mid 50s as eyesight deteriorates with age I have slight problems with close vision and slight problem with distance vision. I also have dry eyes which is a recently identified issue (by me) confirmed by optician again I...

I’m liking Ben Marsh

Wasn’t KPAX a planet Kevin Spaceys character said he came from. Can’t remember what film. Seems a bizarre choice for a name for an alleged medication

@lunarainbows are you in contact with 25% group

What other than assumption is the basis for saying anyone with milder forms have higher spontaneous recovery chance. How many times do we hear of people who had ME as an adolescent where it “returns” later.

He’s got his own approach it’s not what I would do in his situation but clearly he believes it’s what will bring most influence to bear. Activity is definitely one where I think his line to take doesn’t highlight the situation from severe perspective. I also would like to see evidence to...

Ive tried it not long after I was diagnosed. i get swollen glands as part of flare ups so thought it possibly would be relevant to me. But I couldn’t tolerate the massage it made me sore.

Exactly bad stuff happens to everyone if you live long enough. Even rich people have bad stuff in their lives, poor people multiply that by 10. Makes me sick the way these people twist it round to make money out of people.

Ok I got confused about the timeline

Either people on here like @Peter Trewhitt are geniuses or these researchers are really really thick why can they not pick up these issues themselves?

Team from Harvard

Surely the accurate thing to say about what happened would be they were confident it was helpful for diagnosis, their own research backed this up. Then the right thing to say for the future would be but as that hasn’t been replicated it won’t be used diagnostically in future. Maybe they can...

Maybe a mini fridge? Or a cool box that could be stocked up when you’re going to be on your own?

Latest report from BBC Capita have dropped their case https://www.bbc.co.uk/news/uk-england-shropshire-49281391