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Twitter at least has an element of monitoring when I’ve reported stuff on there they occasionally take action. On Facebook nothing I’ve ever reported has been deemed to be outside even their low standards theres such a mix you really do have to look behind anything to see as best you can if...

So the behavioural treatment CBT helps (allegedly) so the problem must be behavioural. all those health charities welcoming CBT as psychological support for their diseases be careful what you wish for - psychosomatic Trojan horse.

TRIPE barrels full of the stuff

Great stuff by @Brian Hughes love you brought Father Ted into your blog :thumbup:

Brilliant work @Michiel Tack you totally shredded their shoddy workmanship.

So if they’re so similar is there really any point in having something called Qfever fatigue syndrome?

Reduce Chalder research certainly

Agree - I think it would be practice nurse role for regular reviews. And making those appointments 20 minutes instead of 10 so the nurse could have a chat and bring in the messages and build up a relationship with the patients would be more effective.

From my brief skim it would appear that people who have diabetes and have had leg ulcers are to be actively encouraged to monitor their physical symptoms and to seek help.

Hope it goes well I see there’s a State level politician due to take part as well which seems positive.

Our guidelines and in particular the communication of them has been a complete mess since February.

Is there a source for your statement about Narcissistic Personality Disorder?

I wasn’t taking the Fatigue Impact Scale as a perfect fit for ME just on a pragmatic basis as something already tested in MS it seems like it could be a good option to supplant Chalder everywhere that questionnaire is currently used.

Not transparent. Some effort to communicate highlights with the wider ME community should be a basic output.

I think this is the one I’d seen - even just adopting this would be a big improvement over Chalder’s effort. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3883028/

I realise being in a couple or living with family with ME has its own difficulties and I wouldn’t choose to live with others. However I have spent a few days or weeks here and there where I haven’t had to do any cooking or tidying or organising getting maintenance jobs done etc and that felt...

Good to see researchers other than @dave30th looking at this issue of spin

I feel it more in my lower back and pelvis like my muscles are struggling to hold my torso up. But then I’m overweight so it’s a lot of effort.

Maybe some of these vile twitter comments about long Covid not being real will really start to enlighten long Covid people that if they have ME or not they are still in for a load of crap.

Oh no I have lost the thread I wasn’t saying it should be specified anywhere just an example that not all psychological support involves trying to control people.