Search results

  1. NelliePledge

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    Standard medical care. Aka we can’t do anything for you so go away and stop reminding us of that.
  2. NelliePledge

    A perspective on causation of the chronic fatigue syndrome by considering its nosology, 2019, White

    Test of these people who reckon it’s functional - would they be willing to have a blood transfusion from some people with ME?
  3. NelliePledge

    ME/CFS NICE Guideline - Safety testing of GET in PACE trial

    Agreed this is an excellent post @Barry very understandable to non scientist and a compelling comparison.
  4. NelliePledge

    A perspective on causation of the chronic fatigue syndrome by considering its nosology, 2019, White

    I thought he’d retired? Wasn’t that said when they were fighting the release of data. Maybe if he’s out of retirement he can now get off his arse and fully cooperate in releasing data.
  5. NelliePledge

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    :sick:
  6. NelliePledge

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    That question 5 on the first doc is particularly invidious Even though I experience symptoms I don’t think they are actually harming me. Talk about leading the witness.
  7. NelliePledge

    Fantastic redesign of hot water bottle for pain relief

    Sounds like you bought my size ;)
  8. NelliePledge

    Fantastic redesign of hot water bottle for pain relief

    I like the look of the ones on the second link. They look pretty comfy. I usually go for M&S basic big knickers or Sloggi.
  9. NelliePledge

    Symptom frequency & development of a generic functional disorder symptom scale suitable for use in studies of patients w/IBS, FM and CFS, 2019, Hyland

    TRIPE
  10. NelliePledge

    The PACE trial video series by A Broken Battery

    I think it’s very good for education of people with ME who aren’t well informed about the politics.
  11. NelliePledge

    Activity baseline vs activity ceiling, why concepts and language matter

  12. NelliePledge

    Activity baseline vs activity ceiling, why concepts and language matter

  13. NelliePledge

    Activity baseline vs activity ceiling, why concepts and language matter

    Yes there are some good graphics I’ve used on social media to get the battery message over. Occasionally post it if I’ve got bad PEM to highlight that to social contacts in a more accessible way.
  14. NelliePledge

    What is Lyme disease and what are the symptoms of the rapidly increasing illness? ITV report (UK)

    They seemed to be starting to take it a bit more seriously last year when public health England actually published a public information leaflet.
  15. NelliePledge

    Devastated parents (of Gloucester, UK) fear Lyme disease killed daughter 11 years after tick bite in Australia

    I hope there will be a thorough investigation of the cause of death.
  16. NelliePledge

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    @Caroline Struthers can you nominate any ME papers?
  17. NelliePledge

    BBC article about vagus nerve stimulation study

    https://www.bbc.co.uk/news/health-49157343 Apparently this is aimed at over 55s to help with autonomic issues that increase with ageing.
  18. NelliePledge

    Hopeful Medicine - Concerning article on NHS 10 yr plan,by DietDoctor.com

    Stuff like this does make sense from his T2 Diabetes perspective. Until GPs are better educated about ME there’s always going to be a high risk that they will try to deploy this type of approach with people with ME that’s already the status quo I don’t think this particular article will make the...
  19. NelliePledge

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    Except he has 500k twitter followers so it may be worth one of his academic peers approaching him just in case he is more open minded than that Dunno if anyone on here has a link in to any of the Harvard Group?
  20. NelliePledge

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    Someone should highlight Pinkers intervention to Ron Tomkins possibly discussion between fellow Harvard people may be useful.
Back
Top Bottom