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  1. J

    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    It would be nice to know if Fluge and Mella measured something like this in the CYCLOME study...to see if cyclophosphamide made the blood nice in the patients who were responders...
  2. J

    New sleeping sickness drug approved

    https://www.nytimes.com/2018/11/16/health/sleeping-sickness-africa-cure.html They managed to secure $63 million in funding for this...a horrific disease, but a disease that only affects a couple of thousand people per year.........maybe suramin won't be needed anymore...
  3. J

    A20 critically controls microglia activation and inhibits inflammasome-dependent neuroinflammation

    https://www.nature.com/articles/s41467-018-04376-5 Wonder if PWCFS/ME have a Nlrp3 inflammasome signature and IL-1β expression in brain and cerebrospinal fluid, similar to MS Microglia, the mononuclear phagocytes of the central nervous system (CNS), are important for the maintenance of CNS...
  4. J

    NSAIDS

    This thread https://www.s4me.info/threads/etoricoxib-arcoxia-any-experiences.5377/
  5. J

    Ampligen for ME/CFS

    What's the update on Ampligen? Are people getting Ampligen in Nevada and North Carolina? How does one get Ampligen in Nevada or North Carolina? Is it working? Can a person get Ampligen in Argentina or Europe? Thanks
  6. J

    CFS Research Center at Stanford Second Annual Community Symposium Sept. 29-2018

    Hi, I missed the symposium--I guessed that there was nothing definitive on Cyclophosphamide from Fluge? I see from Cort Johnson's tweets that he infers that there are some positive results..... Thanks
  7. J

    He Got Schizophrenia. He Got Cancer. And Then He Got Cured.

    From the above article....... “In the late 19th century, physicians noticed that when infections tore through psychiatric wards, the resulting fevers seemed to cause an improvement in some mentally ill and even catatonic patients. Inspired by these observations, the Austrian physician Julius...
  8. J

    He Got Schizophrenia. He Got Cancer. And Then He Got Cured.

    https://www.nytimes.com/2018/09/29/opinion/sunday/schizophrenia-psychiatric-disorders-immune-system.html?rref=collection%2Fsectioncollection%2Fopinion&action=click&contentCollection=opinion&region=stream&module=stream_unit&version=latest&contentPlacement=4&pgtype=sectionfront Interesting........
  9. J

    Mycoplasma infections in people with ME/CFS

    @James Morris-Lent Would you mind sharing which antibiotic helped you? Thanks
  10. J

    Lofepramine/phenylalanine for fatigue

    Hello, There was some research into looking at a combination of lofepramine and phenylalanine to treat fatigue in MS. It looks like it had a marginal effect https://www.ncbi.nlm.nih.gov/pubmed/12185153 and https://www.ncbi.nlm.nih.gov/pubmed/12376086. Anyway a company called Multicell...
  11. J

    Mycoplasma infections in people with ME/CFS

    Hi, In the late 1990's early 2000's there were several studies looking at mycoplasma infections in CFS, and researchers generally found much higher mycoplasma infection rates in PWCFS than healthy controls, e.g. https://academic.oup.com/femspd/article/34/3/209/558832. Doesn't seem like there...
  12. J

    Cyclophosphamide drug questions?

    Thanks—I had kept hearing early 2018.
  13. J

    Cyclophosphamide drug questions?

    Hello, Anybody have any info on the status of the publication of the Norwegian cyclo study? It’s no longer early 2018. Maybe article needed major revision? Thanks.
  14. J

    Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in CFS, 2018, Barnden et al

    Like tinnitus and narcolepsy....two dieseases with no cure.....ugh... https://tonic.vice.com/en_us/article/59ypvn/were-taking-the-first-steps-toward-a-cure-for-narcolepsy
  15. J

    Etoricoxib (Arcoxia) - Any experiences?

    https://blog.iodine.com/3-surprising-medicines-that-might-help-your-depression-d31f7f7869c6 See here also, but E>>C
  16. J

    Etoricoxib (Arcoxia) - Any experiences?

    Good, good, good. Has a potent mood-boosting effect also (at least for me). Here is study for Celebrex...but I find Etorioxib to be significantly/noticeably better than Celebrex. https://www.sciencedaily.com/releases/2016/11/161110145921.htm
  17. J

    Alpha-gal syndrome: Meat allergy linked to tick bites

    https://www.nytimes.com/2018/07/24/magazine/what-the-mystery-of-the-tick-borne-meat-allergy-could-reveal.html?action=click&module=Top Stories&pgtype=Homepage Not me/cfs but interesting
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