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Hello, I'm on approximately day 45 of a trial of aripiprazole (Abilify). I wanted to do a post around day 50 or so, but I am feeling the pressure to post based on the recent Abilify thread. I decided to try Abilify after hearing that Whitney was improving on it. I have progressive...

I’m having a good respond also—medium-level game changer. I was planning to post in a couple of days.

It is not a useful term--I am sure. I agree with @Jonathan Edwards here. And I've mentioned this on this forum before. Let's all try to avoid using the term Long Covid, as it will likely bring Long-term problems. If people who had Covid, haven't recovered and have the neurological symptoms...

From a recent email exchange with Robert Naviaux...some comments about the cause of MECFS. I posted the Lawson et al. paper here. https://www.s4me.info/threads/elevated-energy-production-in-chronic-fatigue-syndrome-patients-lawson-et-al-2016.16760/ Here is a link to the CFS page on his web...

elusive?? Great that she was able to write another book with MECFS.

Maybe someone on twitter could tweet at Janet Dafoe to indicate a couple recordings (not all) of presentations that patients would be interested in hearing, e.g. Mark and Ron Davis and Robert Phair.

Where are my Norwegians? Maybe they are participating by Zoom call, but not giving presentations?

https://jneuroinflammation.biomedcentral.com/articles/10.1186/s12974-020-01887-1

So where can I get a check-up on my right parahippocampal gyrus, right precuneus, and juxtacortical white matter?

https://www.frontiersin.org/articles/10.3389/fncel.2019.00514/full

https://nn.neurology.org/content/7/5/e854 Popular article here Hunting for a "Hidden Pathology": Why Is Fatigue So Debilitating in Multiple Sclerosis? https://www.technologynetworks.com/neuroscience/news/hunting-for-a-hidden-pathology-why-is-fatigue-so-debilitating-in-multiple-sclerosis-339120

Link here https://forums.phoenixrising.me/threads/an-announcement-from-ron-davis-phd.81243/ The ME/CFS Collaborative Research Center at Stanford is pleased to announce the 4th Annual ME/CFS Working Group Meeting on the Molecular Basis of ME/CFS. However, Unfortunately, the Community Day at...

https://pubmed.ncbi.nlm.nih.gov/27747291/ http://www.jnsci.org/files/article/2016/e221.pdf Thread. https://forums.phoenixrising.me/threads/elevated-energy-production-in-chronic-fatigue-syndrome-patients.47443/

I suppose by biphasic sleep I mean at least somewhere between 2-3 hours awake between 2 separate sets of sleep. So go to sleep at 1030PM wake at 2AM. Awake from 2AM-430AM. Second set of night sleep from 430-8AM. Something like that. ETA— I posted this at the same time as the @James...

If anyone else has energy and wants to point out any corrections to that article the email for the corrections department is nytnews@nytimes.com

FWIW I just sent a request to the NYT for a correction of this sentence. "Immunologists speculate that long-haulers’ symptoms might persist because they harbor fragments of viral genes that are not infectious but that trigger violent immune reactions." I believe that Ron Davis' group has/had...

horrible disaster article--no mention of ME/CFS everything is a psycho problem--really bad

Yes

info on Z drugs can be found here. https://www.fda.gov/consumers/consumer-updates/taking-z-drugs-insomnia-know-risks https://en.m.wikipedia.org/wiki/Nonbenzodiazepine

This poll is an updated version of the one from 2018 Biphasic sleep is a subset of problematic sleep maintenance. Some people many wake for half an hour and fall right back to sleep. Others may stay awake for several hours before going back to sleep--this is more like bi-phasic sleep.