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https://www.nytimes.com/2020/09/02/health/als-icebucket-treatment.html?surface=home-discovery-vi-prg&fellback=false&req_id=641572005&algo=identity&imp_id=185390044&action=click&module=Science%20%20Technology&pgtype=Homepage MECFS needs its own ice bucket challenge....

Specifically, what types of kinase inhibitors do you think might benefit ME/CFS patients (to interrupt signaling)?

https://pubmed.ncbi.nlm.nih.gov/31104106/ In vitro effects of antipsychotics on mitochondrial respiration Maybe this fries your mitos like anti-virals...

I have an advisory role on the Columbia U ME/CFS center. They wanted to know if folks had any questions for their researchers on their study "Plasma proteomic profiling suggests an association between antigen driven clonal B cell expansion and ME/CFS, 2020, Lipkin et al" If you have any...

partially about “long Covid” aka ME/CFS

https://www.nytimes.com/2020/08/28/opinion/coronavirus-misinformation-faceboook.html?action=click&module=Opinion&pgtype=Homepage One of the authors Spencer contracted Ebola.

I've reached out via a Columbia U. liaison to Lipkin, Horning and Komaroff. Do I get a Cadbury Flake or the Fruit Pastilles? To reach Ron Davis and Ron Tompkins try contacting Chris Armstrong carmstrong@omf.ngo Somebody else do this. You get an old standby--Hershey bar with almonds.

Here is part of the abstract from the Rekeland (Fluge) cyclo study https://www.s4me.info/threads/intravenous-cyclophosphamide-in-myalgic-encephalomyelitis-chronic-fatigue-syndrome-an-open-label-phase-ii-study-2020-rekeland-mella-fluge-et-al.14925/ Results: The overall response rate by...

Moderator note: This post and following posts have been moved from this thread: A request to those involved in ME research to indicate their position on spinal surgery I could follow up on these two and maybe Komaroff. But I think it needs to be addressed as to how several people got...

Whatever happened to this? Did Perez respond to the Tuller letter? @dave30th I sort of liked Perez’ admission that that he didn’t really care about what the data showed—very frank of him!

List of drugs for MS https://www.nationalmssociety.org/Treating-MS/Medications

Another drug for MS, still nothing for MECFS. https://www.medpagetoday.com/neurology/multiplesclerosis/88195

Low dose of aripiprazole advanced sleep rhythm and reduced nocturnal sleep time in the patients with delayed sleep phase syndrome: an open-labeled clinical observation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5965391/

Looks like it’s still under consideration for the EU. EMA Panel Backs Filgotinib (Jyseleca) for Rheumatoid Arthritis https://www.medscape.com/viewarticle/934782

Is this sentence as bad as I think it is? Hmmm maybe it is indistinguishable because IT IS MECFS. (from Komaroff article)

https://www.barrons.com/amp/articles/fda-rejects-potential-gilead-blockbusters-scrambling-drug-stocks-51597846377

https://www.fiercebiotech.com/biotech/fda-rejects-gilead-s-would-be-blockbuster-filgotinib-over-toxicity-concerns Testicular toxicity! Wow—This is the drug KDM was promoting, and planning to do trials with. See here...

https://en.wikipedia.org/wiki/Upadacitinib https://www.rinvoq.com/ Janus kinase inhibitor that is selective for the JAK1 subtype of this enzyme--for the treatment of RA @Jonathan Edwards Any chance that this might also work for ME/CFS? I ask because I am bombarded with TV commercials for...

Can someone tell me how to get the Komaroff article--Can't get it from JAMA or SCIHUB--thanks Got it, thanks.