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  1. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    https://www.orlandosentinel.com/sports/orlando-magic/os-sp-mo-bamba-covid-19-20200816-hl6gododobc43gtj2y6cxlvrwm-story.html Magic hope doctors can help Mo Bamba solve COVID-19 mystery
  2. J

    BPS attempts at psychologizing Long Covid

    This was a dumpster fire article that did not mention MECFS even once, but did mention a bunch of psycho stuff. Maybe I will email her. @dave30th ?
  3. J

    USA: Interagency ME/CFS Working Group

    Nice summary @rvallee
  4. J

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Might be some intellectual property issues. Also if he is saying that they will use an existing start-up company, I think that is better than starting up a brand new company to do this project. It could take a while to get things going if they are making a brand new company.
  5. J

    New York Times: How Howard Bloom, Writer and Former Publicist, Spends His Sundays

    ‘The Grand Unified Theory of Howard Bloom’ Review: A Career Rewritten https://www.nytimes.com/2020/07/21/movies/the-grand-unified-theory-of-howard-bloom-review.html Mentions CFS Film trailer in the article.
  6. J

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    I guess I was hoping that he could give a 30 second overview of this new theory, even if not tested, fully vetted or published.
  7. J

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    New MECFS theory.....hmmm— maybe not the metabolic trap.....
  8. J

    Pilot randomized active-placebo-controlled trial of low-dose ketamine for the treatment of multiple sclerosis–related fatigue, 2020, Fitzgerald et al

    https://www.discovermagazine.com/mind/depression-ketamine-eyes-hath-seen-the-glory This post discusses the Midazolam as active control issue.
  9. J

    No Benefit of 3 Commonly Used Medications in MS Fatigue

    Stimulants are pretty effective for things like narcolepsy, etc., so there are some treatments available for certain conditions.
  10. J

    No Benefit of 3 Commonly Used Medications in MS Fatigue

    https://www.medscape.com/viewarticle/931397 might be paywalled
  11. J

    Pilot randomized active-placebo-controlled trial of low-dose ketamine for the treatment of multiple sclerosis–related fatigue, 2020, Fitzgerald et al

    Popular article https://multiplesclerosisnewstoday.com/news-posts/2020/07/07/pilot-randomized-active-placebo-controlled-trial-of-low-dose-ketamine-for-the-treatment-of-multiple-sclerosisrelated-fatigue/ Journal https://journals.sagepub.com/doi/abs/10.1177/1352458520936226?journalCode=msja
  12. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    By post Covid MECFS I mean MECFS that was triggered by infection from Covid-19.
  13. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    @Trish I agree that people with lung or other direct organ damage shouldn't be defined as having ME/CFS--but generally problems from lung damage, like difficulty breathing, aren't MECFS symptoms. If people have organ damage plus ME/CFS symptoms then maybe don't diagnose them so quickly. The...
  14. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Strongly disagree with this statement. There is no scientific evidence that post-covid ME/CFS is any different from "regular" ME/CFS. If you meet the diagnostic criteria for ME/CFS (and length of time requirements), then you have ME/CFS. The diagnostic criteria for ME/CFS are agnostic with...
  15. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    What to Do When Covid Doesn’t Go Away https://www.nytimes.com/2020/08/08/opinion/sunday/covid-lyme-treatment-medicine.html? Doesn't mention ME/CFS. Comments are open on this article, so if you can, please mention ME/CFS in your comments.
  16. J

    TSPO-PET/MRI Reveals Increased Neuroinflammation in Basal Ganglia in Chronic Fatigue Syndrome Patients

    https://forums.phoenixrising.me/threads/second-study-confirms-neuroinflammation-in-me-subcortical-brain.80923/ The first post here has a good explanation of the significance of this finding.
  17. J

    TSPO-PET/MRI Reveals Increased Neuroinflammation in Basal Ganglia in Chronic Fatigue Syndrome Patients

    Maybe now there are potential targets for pharmaceuticals? e.g. Neuroinflammation as a Factor of Neurodegenerative Disease: Thalidomide Analogs as Treatments https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6904283/#__ffn_sectitle
  18. J

    TSPO-PET/MRI Reveals Increased Neuroinflammation in Basal Ganglia in Chronic Fatigue Syndrome Patients

    Couldn’t find the abstract.
  19. J

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    Not optimistic that ANY of these will help people with MECFS. Also not a fan of folks who call their OWN work ambitious.
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