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Personally, I don't think anyone within the orbit of Pluto who is involved with LP should be involved in the recruitment of participants.

Does the WAVE 3 gene have anything to due with the deformability of red blood cells? [It's not helping my search that "WAVE 3" is also a television news station in Louisville Kentucky. :rolleyes: ]

My mother developed chronic ulcerative colitis (an autoimmune disease) in her 30's, which likely led to the development of liver cancer (actually bile duct cancer within the liver) in her late 50's - ultimately taking her life. [ETA: clarified bile duct cancer]

Half the patients could get yoga... and the other half would get Yoda.

This is a New York Times news story, not a scientific paper - so I'm not sure if this the right place to post this. A Cancer Trial’s Unexpected Result: Remission in Every Patient https://www.nytimes.com/2022/06/05/health/rectal-cancer-checkpoint-inhibitor.html At Memorial Sloan Kettering...

Might have been interesting to know when the patient scans were made relative to their infections. The "first patient" became ill in December 2020, while the "second patient" became ill 9 months earlier in March. If the scans were done at the same time, the stronger intensity of patient 1's...

It seems like a large sample size (4,501), so you’d think that the fact that half of the college age participants who came down with infectious mononucleosis (18/36) went on to develop ME/CFS would be a headline in and of itself. Even if it were confined to “college age” participants, if that...

Well, when it comes to ME/CFS, it sure seems like...

The full study title would not fit, so here it is: Factors Associated with Post-Acute Sequelae of SARS-CoV-2 (PASC) After Diagnosis of Symptomatic COVID-19 in the Inpatient and Outpatient Setting in a Diverse Cohort https://link.springer.com/article/10.1007/s11606-022-07523-3 PDF here...

Of course, though symptoms are subjective, signs are objective. A doctor may recognize signs that you are unaware of.

I would agree with this if we had some idea of the mechanism of ME/CFS, and thus would have some basis for investigating treatments, even if we didn’t understand the origin of the illness. Treatments are developed for cancer even when the origin of the particular cancer is mysterious, but...

The term for this is "The Ingelfinger Rule."

Ideally, I think you'd want researchers to be agnostic going in. You probably don't want someone who comes to the research with a lot of pre-conceptions, even if those preconceptions align with your own. You'd probably even prefer someone who's skeptical of your own view, rather than aligned...

UCLA press release on the study: https://newsroom.ucla.edu/releases/long-covid-19-suppressed-immune-system Longer article at Fox News: https://www.foxnews.com/health/long-covid-19-may-be-caused-abnormally-suppressed-immune-system-small-ucla-led-study

This 2016 study by Leonard Jason, et. al., from DePaul University, found that 25% of ME/CFS patients were confined to their homes due to "severe symptomatology." This is similar to the ICC criteria which calls "mostly housebound" "moderate" and "mostly bedridden" (and thus presumably "confined...

I think I would describe the character of the ever-present “background” fatigue in ME/CFS as being most like the fatigue you feel when you’re initially coming down with the flu. It’s not PEM, because it’s a constant regardless of exertion. Fatigue like this can be the very first sign of the flu...

After the recognition of Long Covid, ME/CFS should have been re-named "WTTWY." "We Tried To Warn You."

I think Dr. Fauci's position is "Chief Medical Advisor to the President." Unless something has changed, it had been previously announced that the former director of the NIH, Dr. Francis Collins, would serve as the "acting" "Science Advisor to the President" ("acting" meaning Collins has not yet...

Fortunately, proponents of the BPS model of ME/CFS are well known for their sense of humor. I mean, how could they not be? [I think Hughes actually says "by clinicians to the new guideline" instead of "like clinicians," although the auto-transcript does say "like clinicians to the new...

Looking forward to reading this.