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  1. Forbin

    Ron Davis: Grant award: Molecular and single-cell immunology in ME/CFS

    According to Cort's article about this on his website ( https://www.healthrising.org/blog/2018/06/25/davis-nih-grant-chronic-fatigue-syndrome/), it seems that this was the first of Ron Davis' applications to go through a "special emphasis" review panel for ME/CFS.
  2. Forbin

    Ron Davis: Grant award: Molecular and single-cell immunology in ME/CFS

    Yes, I noticed that between "Autoimmunity" and "Autoreactivity" they wedged in "Automobile Driving." :confused: [Fantastic news BTW!]
  3. Forbin

    Waking up in the night and hearing a brain-generated sound

    Sounds somewhat like, believe it or not... "Exploding Head Syndrome." What you describe sounds like a more complex sound, so it might not be EHS. I experienced something along these lines once or twice about a decade ago. It was like waking up hearing a loud "crack" that seemed to come from...
  4. Forbin

    How to create good quality research proposals?

    I believe the 2-Day CPET test was mentioned at the hearing today. Replicating that and determining how specific that test is to ME would be of great value. The BPS explanation is in doubt. Confirming the diagnostic validity of 2-Day CPET might shovel the deconditioning theory into its grave...
  5. Forbin

    Michael Sharpe skewered by @JohntheJack on Twitter

    In this 1996 paper by Sharpe, et al., Cognitive behaviour therapy for the chronic fatigue syndrome: a randomised controlled trial, they say: I'm hard pressed to think to of something that is "inaccurate" yet "true." Common synonyms are "erroneous," "fallacious," "incorrect," "wrong," and yes...
  6. Forbin

    Joseph Stashko: How to (almost) disappear completely

    I like to think that I know good writing. That was good writing. :thumbup:
  7. Forbin

    Michael Sharpe skewered by @JohntheJack on Twitter

    The one that begins with "First, do no harm."
  8. Forbin

    Michael Sharpe skewered by @JohntheJack on Twitter

    It might go back to here (1998), though the word "false" is not used. I can only see the abstract. ETA: RE: "than has been previously thought..." The above assertion that causal beliefs do not affect outcomes (as opposed to beliefs about exercise/activity) runs contrary to a LOT of prior...
  9. Forbin

    Michael Sharpe skewered by @JohntheJack on Twitter

    I'll see your 2003 citation and raise you this February 19, 2002 citation in The Guardian. It's from a letter to the editor in response to an article of February 7th titled "The Making of a New Disease."
  10. Forbin

    David Tuller: Trial By Error: An Open Letter to The Lancet, Two Years On

    I haven't tried to compare all of the names side-by-side but I did notice that Dr. Derya Unutmaz of The Jackson Laboratory for Genomic Medicine was new to this letter. The previous letter preceded the grants made to Dr. Unutmaz and his lab for the study of ME/CFS which were made by the NIAID...
  11. Forbin

    David Tuller: Trial by Error: Sir Simon Scores an Own Goal

    Personally, I can't imagine anyone being so crass as to hijack the Knight-errant's ocean-liner metaphor simply for the purpose of comparing the fateful story of the S.S. Titanic with the increasingly desperate attempts to save PACE.
  12. Forbin

    'Shaking and trembling with ME/CFS' - Chronically Hopeful

    I noticed this sort of mildly twitchy hand tremor starting when I was 19, about three years before onset. It's more noticeable if your arm has no support and your hand is just suspended in air. You can't keep the individual fingers still no matter how hard you concentrate. It has faded as I've...
  13. Forbin

    Recovery of Repressed Memories in Fibromyalgia Patients Treated With Hyperbaric Oxygen, 2018, Lev-Wiesel et al

    First author of the paper gives a TEDx Talk in 2015 titled "Reverse Aging," but he's basically talking about rejuvenating the body/brain with HBOT. Says we only use 5% of our brain. Hmmm....
  14. Forbin

    Nuclear (Thallium) Stress Test, Anyone?

    I had this test a couple of years ago. In my case, I believe the radioactive tracer was Technictium-99. As the webpage you linked to said, if you are unable to do the treadmill test, they can give you something (possibly something like amyl nitrite) to speed up your heart rate, if necessary. I...
  15. Forbin

    The Stanford Prison Experiment was massively influential. We just learned it was a fraud.

    The author of the Stanford Prison Experiment was actually the co-author of the introductory textbook used in my college psychology course. According to Wikipedia, it's a very widely used textbook, but I can't recall if it discusses the prison experiment. It and the Milgram Experiment were...
  16. Forbin

    Analysis of data from 500k individuals in UK Biobank shows an inherited component to ME/CFS (Ponting blog)

    I was curious about this, too. I would assume that it would have to be quite high in order to get a p-value of 2.5x10^-12 ( 1 in 400 billion compared to the typical significance threshold of 1 in 20 ), but maybe not with the huge number of subjects without CFS. The total number of subjects...
  17. Forbin

    Is this allergy or something else?

    This kind of reminds me that, when I was really young, like between 3 and 6, I would get a pretty bad headache, and generally feel terrible, if I accompanied my mother to a garden nursery to buy plants, etc... I would complain, but my mother seemed to be incredulous that anything about the...
  18. Forbin

    Canada: Woman With Chronic Fatigue Syndrome Denied Disability Benefits

    Yes - the disability law firm mentioned in the article seems real enough and is located in Toronto. https://www.sharelawyers.com/
  19. Forbin

    Canada: Woman With Chronic Fatigue Syndrome Denied Disability Benefits

    I ran into a "news" website that looked like this once before while following a link to an ME story. It looked very "synthetic" and had a page of "reporters" photographs that made me suspicious of whether those really were their "reporters" or were just some "stock" photos. It seemed like just...
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