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  1. Forbin

    Article: Will there ever be a test for chronic fatigue syndrome?

    To paraphrase Jemaine Clement of Flight of the Conchords... "That's why I said 'Isn't it...?" :)
  2. Forbin

    Article: Will there ever be a test for chronic fatigue syndrome?

    That sounds difficult and expensive. Isn't it easier and more cost effective to listen to the experts who say that we can achieve flight if we just stop fearing gravity and try to jump a little higher each day? :rolleyes:
  3. Forbin

    Articles on NICE guidelines 'pause'

    I'm sure there was a time when doctors said, "Without bloodletting, we have nothing." Is the concept of "worse than nothing" really so hard to understand?
  4. Forbin

    Learning to feel tired: A learning trajectory towards chronic fatigue, 2018, Lenaert et al.

    Uh, guess what... this is the basis of all drama. You see characters on stage or in a film and you empathize with them. You feel their joy, their suffering, and, in this case, their fatigue. The more you can personally relate to their experience, the more you will empathize. It is not startling...
  5. Forbin

    Learning to feel tired: A learning trajectory towards chronic fatigue, 2018, Lenaert et al.

    For an abstract about the 'ALT+F' model, it's remarkably full of... .
  6. Forbin

    The Washington Post: My hope vs. myalgic encephalomyelitis, a chronic neuroimmuno illness

    From the article: This is unbelievable, though a better word might be "reprehensible." For someone to tell a patient who was still in the first year of ME/CFS that they will never work again is unconscionable. Remember, this happened "thirty years ago," so it would have been in 1991, when...
  7. Forbin

    Article: Is Long COVID Really Chronic Fatigue Syndrome by Another Name?

    That's an interesting U.S. study, @Webdog. They attempt to avoid duplication of the "de-identified" patients who might be counted more than once during the period of 2011-2016 due to a change in insurance carriers. They do this by requiring patients in two subsets to have continuous coverage...
  8. Forbin

    Article: Is Long COVID Really Chronic Fatigue Syndrome by Another Name?

    From the article: I thought it was more often said to be about one million US cases (which is based on Leonard Jason's prevalence study). I think the CDC once claimed 1-4 million cases, but, as I recall, that included cases of "chronic fatigue" that didn't really meet the definition(s) of ME/CFS.
  9. Forbin

    Covid-19 vaccination experiences

    I believe there was a recent video in which Dr. Komaroff mentioned the phenomena of some people with ME and/or Long Covid feeling "better" after getting the vaccine. He thought this should be looked into and mentioned that, when you get an infection, the immune system ramps up, but it also then...
  10. Forbin

    Trial By Error: Why Have Experts in MUS Spent Ten Years Mis-Citing a Study about Costs to the NHS? David Tuller

    The erroneous use of this statistic might be labeled "Low Accuracy" but "High Precision." It's "high precision" because everyone is making the same mistake, but "low accuracy" because it's just plain wrong. This kind of thing usually represents some kind of "systemic error." [I know. Shocking...
  11. Forbin

    Covid-19 vaccination experiences

    Hi, Perrier. I'm very sorry to here about your daughter's reaction to the second shot. I hope she is better soon. I was referring back to my post here. The first shot of the Pfizer vaccine that I got was pretty much like any other flu shot. I had no reaction other than a somewhat sore shoulder...
  12. Forbin

    New Name For "Brain Fog"?

    "Brain Fog" probably has a lot of different aspects, but I wonder if "word finding" (difficulty coming up with the right word to use) would be one of the more objectively testable symptoms. Something that's also objective that I'd look for might be called "question response time." I don't know...
  13. Forbin

    Covid-19 vaccination experiences

    They did require some form of I.D., but it seemed they were mainly interested in making sure that you lived and/or worked in the county where you were getting the vaccine. That concern probably stemmed from when there was a very limited supply of the vaccines and they didn't want people to seek...
  14. Forbin

    Fatigue in psychosis, 2021, Poole-Wright, Chalder et al

    So is the fatigue a factor in the development of the psychosis, or is the psychosis resulting in the development of fatigue? Or both? Or neither?
  15. Forbin

    Endothelial Senescence and Chronic Fatigue Syndrome, a COVID-19 Based Hypothesis, 2021, Sfera et al

    Well, this is pretty close to what has been my leading pet "guess" for a while - except for attributing the translocation to "endothelial senescence." I haven't read the paper yet, but it does seem like a hypothesis based upon another hypothesis; though they say, "This model is supported by...
  16. Forbin

    Open US: The CHROME (CHRonic Fatigue SyndrOME) study

    Somewhere there's a researcher, perhaps in Bristol, kicking themselves for not coming up with this study name first. :)
  17. Forbin

    Herpesviruses serology distinguishes different subgroups of patients from the ME/cfs Biobank. (2021) Dominguez et al

    FWIW, I guess I was thinking of a cbc with a differential, which shows the proportion of different white blood cells in addition to the total. From what I've read, when WBC's are high and the percentage of neutrophils are significantly elevated, it suggests a bacterial infection; if the...
  18. Forbin

    Herpesviruses serology distinguishes different subgroups of patients from the ME/cfs Biobank. (2021) Dominguez et al

    When they talk about a "confirmed infection," I'm guessing that they mean a specific pathogen was identified by a test. However, I think that a complete blood count (cbc) can pretty much "confirm" that the body is responding to an infection, even if it can't tell you what the specific infection...
  19. Forbin

    Covid-19 vaccination experiences

    Everyone in the state who's been vaccinated is eligible for the lotteries, no matter how long ago they got their shot, so there's no incentive to put it off. The exception would be the $50 gifts cards for those vaccinated after May 27th. I'm pretty sure they didn't announce that until after May...
  20. Forbin

    Covid-19 vaccination experiences

    California just did this (sans firearms). They gave out $50 grocery cards to the first 2 million people who got the vaccine after May 27th (so $100 million total). On June 4th and 11th they held lotteries giving fifteen vaccinated people $50,000 on each of those days (30 people / $1.5 million...
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