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  1. Forbin

    United Kingdom: Science Media Centre (including Fiona Fox)

    They produce a handy flier entitled: Advice for Researchers Experiencing Harassment http://www.sciencemediacentre.org/wp-content/uploads/2013/08/Advice-for-researchers-experiencing-harrassment-2013.pdf
  2. Forbin

    Balance deficits in Chronic Fatigue Syndrome with and without Fibromyalgia (2018) Natelson et al

    A couple of quotes from Melvin Ramsay, circa 1986. This is exactly how it started for me. In my case it was not "spinning" vertigo, but rather a failure of the balance system which made me feel "drugged," intoxicated, or had had food poisoning - sort of as if I was seeing the world through a...
  3. Forbin

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    I like how at the new link to the Telegraph article SW isn't even mentioned in the caption to the photo, making him look like some random, wacky guy. Ultimately, he's mentioned at the very end of the article, but, if you don't already know what he looks like, you still don't know who that wacky...
  4. Forbin

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    Yes, and the older woman is Ruth Gordon. She won an Academy Award for this performance and was nominated for Golden Globes for this and "Harold and Maude" (1971).
  5. Forbin

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    You're all so suspicious! Show me one example where things turned out badly when a gregarious older person insinuated themselves into the life of a pregnant young woman by offering health advice! : )
  6. Forbin

    United Kingdom: Science Media Centre (including Fiona Fox)

    I'm having trouble figuring out their priorities...
  7. Forbin

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Have they done any vision tests? Vision and balance are fairly intertwined. In a neurological workup I'm pretty sure they would have checked for nystagmus, but it's a simple test you could easily have not noticed. There's another simple test done in an eye exam where they cover and quickly...
  8. Forbin

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I came across this from "A Hummingbird's Guide to M.E." (2006) [ About 35 years ago, I had spinal fluid drawn about a month after onset. I'm guessing they didn't do tests for oligoclonal bands back then since there was no "box" for it on the lab report. There was a mildly elevated protein...
  9. Forbin

    Entire issue of Post Graduate Medical Journal (11/1978) devoted to ME

    [University of Miami - 2009] Clin Sci (Lond). 2009 Oct 19;118(2):125-35. doi: 10.1042/CS20090055. Chronic fatigue syndrome: illness severity, sedentary lifestyle, blood volume and evidence of diminished cardiac function. Hurwitz BE1, Coryell VT, Parker M, Martin P, Laperriere A, Klimas NG...
  10. Forbin

    Entire issue of Post Graduate Medical Journal (11/1978) devoted to ME

    I believe you can measure the blood volume by injecting a measured dose of a radioactive marker into the blood stream. After the marker has thoroughly mixed with the blood supply, you can then remove some blood and the amount of marker and its ratio to the amount of blood taken will tell you...
  11. Forbin

    Web article. Stem cell research solves baldness

    Ironically, the treatment involves cellular metabolism, pyruvate and the production of more lactate.
  12. Forbin

    Entire issue of Post Graduate Medical Journal (11/1978) devoted to ME

    His range of interests may have expanded over the years... ______________________________ Br J Psychiatry. 2002 Sep;181:248-52. Predictors of response to treatment for chronic fatigue syndrome. Bentall RP, Powell P, Nye FJ, Edwards RH . . . RESULTS: Poor outcome was predicted by membership of...
  13. Forbin

    Stem cell transplant 'game changer' for MS patients

    This is kind of confusing to me because Wikipedia and other sources say there is about a 40% treatment-related mortality rate in HSCT (aka Bone Marrow Transplant), yet that's not mentioned in these articles. https://en.wikipedia.org/wiki/Hematopoietic_stem_cell_transplantation#Complications...
  14. Forbin

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    That is really odd. Is it possible that there is some information that is being conveyed in the initial phone call that is scaring people off? Or could they have been given a call back number that puts them on hold forever? For no one to call back sounds like a real systemic problem that may...
  15. Forbin

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I don't object to this requirement, but it does reduce the pool of potential candidates quite a bit. Not only is it estimated that 91% of patients are undiagnosed, but, in 29 percent of the cases that are diagnosed, that diagnosis took more than five years. So something like only 6.4% of all...
  16. Forbin

    Action for ME has joined S4ME

    I think, if someone is going to join under the name and logo of a real organization, there should at least be some requirement that they be able to prove that they do indeed represent that organization. Do we want some random actor to be able to join and call himself "The National Institute of...
  17. Forbin

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    I appreciate that. I was just trying to point out that Komaroff wasn't exactly giving the therapy recommendations in the review articles a ringing endorsement.
  18. Forbin

    Neurolinguistic programming (NLP)

    I remember being amazed at how many of the drug descriptions in the PDR (Physician's Desk Reference) contain the phrase "The exact mechanism of action is unknown." Trials had proved that the drugs were effective, but why they were effective was often unclear.
  19. Forbin

    Neurolinguistic programming (NLP)

    It may be that research on NLP is difficult to track down because most of it was done in the 1970's and 80's, prior to the internet. This 1987 paper looked at 44 studies on NLP and found only 6 which were supportive. Of the six, four of those papers were graduate theses...
  20. Forbin

    Review article: Does the microbiome and virome contribute to myalgic encephalomyelitis/chronic fatigue syndrome?, 2018, Newberry et al

    This 2017 study from Columbia's Center for Infection and Immunity showed that differing levels of various gut bacteria (called "abnormal levels" in the press release) distinguished ME/CFS patients from healthy controls and also distinguished ME/CFS patients with IBS symptoms from those without...
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