Search results

  1. Sid

    Spouse wants to invite a friend to visit when I’m very sick

    Same here. When I had mild ME, I used to tolerate these cultural practices and would allow people I’m not close friends with to stay in the spare bedroom. Some of these visits were incredibly annoying, up to a week of forced activity. I’ve long stopped allowing anyone to come over which means no...
  2. Sid

    Functional Neurological Disorder is a Feminist Issue 2023, McLoughlin, Chalder et al

    This is truly despicable. I’m actually speechless.
  3. Sid

    Cushing’s Disease Presenting with Functional Neurological (Conversion) Disorder 2023 Ashrafzadeh et al

    It’s so strange that they published this. I hope he sues everyone involved in his “care” for malpractice.
  4. Sid

    Open Medicine Foundation (OMF)

    Much hype, zero results so far.
  5. Sid

    Gait in ME/CFS

    My gait is abnormal. I’ve had other people spontaneously comment on it and even laugh at the way I walk. As I get progressively fatigued, my feet start dragging along the ground. I fall at least a couple of times a year.
  6. Sid

    News from Southeastern Europe

    Loss of consciousness. Dizziness, syncope and the sorts of symptoms we would call dysautonomia.
  7. Sid

    New blood diagnostic company started by Mike Snyder at Stanford

    Fingertip sampling is more painful but it has other advantages. It can be repeated several times a day to track micro changes in a patient with chronic illness. It doesn’t require a trained phlebotomist, doesn’t require a trip to the doctor’s office (useful in places like the US where many ppl...
  8. Sid

    Long COVID: major findings, mechanisms and recommendations, 2023, Davis, Topol et al

    So the major finding is that there are no major findings.
  9. Sid

    Autism Spectrum Disorder May Be Highly Prevalent in People with Functional Neurological Disorders 2022 González-Herrero, Edwards et al

    From the Limitations section: Very biased and bad study published in an obscure open access Chinese journal. People with ASD are often rejected, ostracised and bullied by neurotypical people so it's not surprising that they spend a lot of time on the internet. It's also unsurprising that...
  10. Sid

    Temelimab

    There were stories like this coming out of Norway about rituximab 10+ years ago. It all turned out to be a mirage.
  11. Sid

    Experience with LDN? low dose naltrexone

    Tried it a long time ago, back when it was all the rage. It’s hard to recall the specifics. Some mild initial improvement in ME symptoms but it was coupled with worsening of sleep disturbance and gastroparesis so I had discontinue it.
  12. Sid

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    Bonus points for sexist dig at the childless female patient.
  13. Sid

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    They are all like this. This article almost reads like a self-parody of the entire worthless and disgraceful profession of neurology. They have zero insight into their appalling behaviour and can't even retain a veneer of professionalism when confronted with a patient who they believe has no...
  14. Sid

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    Disturbing article full of lies and self-aggrandisement. Basically, the whole thing boils down to how to trick/screw over the patient. Check out also this self-indulgent bit where they talk about how taking the "functional" patient's history should be tweaked to make it more interesting for...
  15. Sid

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    From an article by this Stone person, coauthored with our old friend Sharpe. First sentence immediate stigmatisation and invoking of negative stereotypes about angry, irritable, depressed woman entering middle age: https://jnnp.bmj.com/content/76/suppl_1/i2 So there you have it, folks. CFS =...
  16. Sid

    The fragile process of Homecoming - Young women in recovery from severe ME/CFS, 2022, Krabbe et al

    These sorts of pseudoacademic disciplines should be completely defunded and the departments purged of people of this sort.
Back
Top Bottom