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  1. Forbin

    'Recovery' statistics

    I doubt it. It's hard to imagine Dr. Bell, noticing that a patient had stopped coming to him, would then, without contacting them, pour over that patient's records to try to see why they had "recovered." He was the only doctor in a town of 800 people. Many of his CFS patients were children.
  2. Forbin

    'Recovery' statistics

    [I originally posted this elsewhere a couple of years ago.] At a lecture he gave in December 2015, Dr. Bell was adamant that 5% of his patients do recover. He was clear that these cases were no different from the other cases he had studied. He had no explanation for their recovery. - - -
  3. Forbin

    USA: Center for Solutions for ME/CFS - news and updates from Columbia University's NIH funded center

    Good to know. I was wondering why the link to the Microbiome Discovery Project (http://microbediscovery.org/) was no longer working...
  4. Forbin

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    There was a video in which Dr. Hyde referred to the story as being "on the front page" of TIME magazine. I don't think he ever said it was "on the cover." He may have been referring to the "Table of Contents," which could well have been the first page opposite the cover when you opened the...
  5. Forbin

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    It seems as though the idea is that the autonomic response to changes in position can become deconditioned due to its disuse in people who stay off their feet (or experience extended weightlessness). The exercises seem intended to challenge the ANS with uncommon situations, as when the head is...
  6. Forbin

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    More information can be found in this dissertation by the author: www.slideshare.net/RobertBallantine/dissertation-final-2408-rab
  7. Forbin

    Do all ME / CFS sufferers have low stamina?

    As other have mentioned, as a teenager I too could only exercise at maximum effort in short bursts. It was in endurance/racing sports, like swimming or running laps, where I would quickly fold - much to my embarrassment. I thought I was just out of shape, but it's almost certain that I had...
  8. Forbin

    Psychology Today blog platform: "It's All in Your Head - The relationship between contested illnesses and psychiatric illnesses"

    Oh, great. So now if you have a brain tumor, you should be OK with your doctor telling you "it's all in your head," because, you know, that's a technically accurate statement. People with ME/CFS clearly don't object to the notion that the disease involves "abnormalities in the nervous system...
  9. Forbin

    Sleep making symptoms worse

    I've posted about this phenomenon on other threads (and on other forums). I've experienced this effect on a couple of other occasions. I believe author Howard Bloom has credited sleeping in four hour chunks with helping to improve his ME/CFS. It seems as though something may be going on late...
  10. Forbin

    Orthostatic Intolerance in chronic fatigue syndrome, 2019, R. Garner and Baraniuk

    I think they're saying that dizziness and lightheartedness can occur in some ME patients both while standing and while recumbent, so one shouldn't assume that they are OI symptoms without checking to see if they also exist while recumbent. If you get dizziness symptoms regardless of position, I...
  11. Forbin

    Animal Models of ME/CFS

    As a first step, it might be best to use machine learning to create a highly accurate computer model of a mouse.
  12. Forbin

    The Stanford Daily: Stanford Medicine professor (José Montoya) fired for violating University rules of conduct (june 2019)

    Article from the Science Magazine website : https://www.sciencemag.org/news/2019/06/chronic-fatigue-scientist-fired-after-conduct-complaints-stanford-says Pretty much the same limited information. Includes a brief comment tweeted by Hillary Johnson.
  13. Forbin

    Video Q&A series from Columbia's Center for Solutions for ME/CFS

    The first 2/3's of this video are about the challenges of building standardized data sets. At about 21:45 he begins to talk about some studies related ME/CFS. Much of this seems preliminary, but, to be honest, it's mostly over my head. :)
  14. Forbin

    Some videos about various topics concerning ME collected by a member

    The worldwide estimate of 17 million cases seems to come from applying Jason's prevalence value (422 per 100,000 adults) to the adult world population (over 18) between 2002-2004. The adult world population has grown since then, so it would've been close to 21.6 million cases in 2018 (maybe 24...
  15. Forbin

    Rituximab and placebo response

    An odd thing I recall about the Rituximab trials was that, of the patients who improved, many did not start to get better until months later. Fluge and Mella had a hypothesis for why this might be, but, since the trial ultimately turned out null, it remains an odd delay for a placebo effect. I...
  16. Forbin

    Jen Brea: My ME is in remission

    This may be a dumb question, but I wonder if one can have the "structural potential" for ongoing brainstem compression, but it takes some kind of event like physical trauma or brain swelling from an infection to initiate this compression. I'm thinking that once it happens maybe this kind of...
  17. Forbin

    Was Stephen Hawking’s Illness Psychosomatic? (No)

    Here's a 2012 article from Scientific American: How Has Stephen Hawking Lived Past 70 with ALS? The article focuses on the variable nature of the disease, which includes a slowly progressive form that has a juvenile onset. The thrust of the article is that Hawking was indeed an outlier, but...
  18. Forbin

    US Senate passes historic resolution on ME/CFS

    If it passes both houses it would most likely be a "concurrent resolution." If so, a concurrent resolution would not have the force of law - but it seems like it might carry some weight during budget appropriations, as the resolution says "recognize and affirm the commitment of the United...
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