Search results

That's how I read it – I don't think they're directly comparing the conditions to each other, just giving a list of examples. Even severe ME is arguably unpredictable, in the sense that we don't know which patients will develop it or when. Some are very ill from the outset; some develop severe...

Me too, I've never heard anyone just say 'pem' to rhyme with 'them'. It'd be very unclear to anyone who wasn't completely keyed-in to discussions about ME, and even some experienced patients would probably struggle to comprehend it as part of a spoken sentence. At least if you spell it out, you...

They've suspended face-to-face assessments for the time being, so your payments should just continue until you're notified of new arrangements.

It'll surprise no-one that significant adverse outcomes can occur, but the severity is really worrying. I wonder whether these reports will affect the FMT research in Norwich.

It'd be so useful to find out what is being taught in medical schools on ME. Not to put the information into the public domain, of course – simply to let Nina know, so that she can factor it into her own education materials. She can probably guess to a large extent what approaches are being...

I woke up to his dulcet tones on Radio 4 this morning. He gets bloody everywhere!

I was lucky in never progressing that far. I was severely malnourished for about eight years – 5' 9" tall and I struggled even to keep up to seven stone – but of course as a teenager in the 1970s, no-one believed me that I didn't have anorexia nervosa. I'd never heard of gastroparesis at the...

Must admit I've only ever had IBS due to developing potato intolerance. For the first 40 years of the ME, there were no IBS symptoms at all; now I know that I need to avoid potato products, my digestion has returned to normal. I had gastroparesis when my ME first started, but after a while it...

I use something called Dermol 500, which has been a game changer – combining it with twice-daily Omega 3 means my hands look completely normal. Even with application of emollients every time I washed them, they used to look as if I'd just finished a three-month stint on a fishing boat in the...

I don't even use the pre-made stuff, as it (along with everything else that's not made for eczema sufferers) will begin to split the skin on my hands within 24 hours of starting using it. Probably somewhat counterproductive when it comes to excluding bugs...

On the question of funding: is there an organisation comparable to the AHRC that funds doctoral research? The arts has used AHRC funding to do some important work. For instance, I was involved in a five-year project where a teacher and director used her PhD programme to develop a framework for...

After spouting all this waffle about surviving the three-day week, I'll now 'fess up to the fact that our independent living co-ordinator knocked on the door on Friday to ask whether I had any plans to protect myself from the possible epidemic. "Umm, punk rock and witchcraft?" She laughed, and...

The effect of a power cut is often large – and can be extremely large, as we saw last year after the lightning strike – but the cause is usually damage to a comparatively small area of infrastructure. This means the number of people required to repair it isn't so enormous that we're likely to...

I can't see why there would be, unless we get very high winds again – and then the lines would be repaired asap, as always. We all depend on the power grid, so it'd be a top priority job.

Are you okay to have bottled gas in your flat? After Ronan Point, even mains gas was (and remains) banned in the low-rise blocks where we grew up. I guess the regulations will vary from one area to another, though. In the power cuts of the 1970s, we used to put candles inside a clay flowerpot...

PWME do seem to respond to challenges in very different ways. For instance, some of us have relapsed after a 'flu vaccine, whilst others have it every year with no problem at all. Some pick up every cold that goes around; some almost never get them; some seem to have the same number of colds...

They're hoping to develop a 'pregnancy test' type device. May not happen fast enough to stop this virus spreading very widely, but the technology developed in response to it could be very useful for future ones.

Too tired to listen music at the mo, but that artwork is fab!

I think part of the strategy is to try and slow it down so that not everyone gets it at the same time, in which case the health service just wouldn't be able to look after folk who become severely ill. People here are for the most part following the advice to carry on as normal, as there's only...

So autism and chronic pain are psychiatric disorders now? :banghead: