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    PACE style CBT for CFS/ME - should it be scrapped?

    I suspect that' s why it was not mentioned. CBT is the universal panacea that lets boxes be ticked.
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    NICE looking for lay members to join the ME/ CFS guideline committee, 2018

    Yes, that makes sense , but there must be other ways of achieving this. If you had to have a single centre why London- why not somewhere geographically more central?
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    NICE looking for lay members to join the ME/ CFS guideline committee, 2018

    Why London? Why not multicentred to enable wider input ? Whilst there may have been some thought re patient engagement this is not coming over. If you want meaningful engagement, with a group that will have their health impacted through travel, then skype participation seems a no brainer, but...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    know
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    That is exactly the modus operandi of the current government full stop
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    I think he must breathe through his ears
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Especially this
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    Presentation: 'A critical approach to Medically Unexplained Symptoms’

    Good Luck - debate would be a good thing.
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    'Shaking and trembling with ME/CFS' - Chronically Hopeful

    I' m pretty sure worst culprit for my aunt was B12 ( and i' m also sure it would make a big difference if she could take it - the double bind again ) If she had had gut issues she might have tried via patches / injections , but won't budge.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    We may be at the Blackadder stage - a pencil up each nostril, a hankie on head and saying " squibble" multiple times ....
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Either he has a cunning plan ...or he is heading for a mid life crisis
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Precisely this.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Perhaps the backchannels no longer have the desired effects?
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    'Shaking and trembling with ME/CFS' - Chronically Hopeful

    @JaimeS - is the blurred vision happening with any B vitamins or specific ones. My aunt went blind for 20 mins when she tried B vitamins and has not supplemented with them since
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    David Tuller: Trial By Error: An Open Letter to The Lancet, Two Years On

    Nicely timed. It can be referred to during the debate at Westminster on Thursday .
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    Video: The PACE trial: a short explanation, Graham McPhee

    I thought this was excellent. The main issue stripped bare and explained with simple clarity. Kudos to you @Graham - you must have been a great teacher. I' m looking forward to the next installment.
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    BABCP Annual Conference and Workshops

    My son' s girlfriend qualifies as a nurse this year, specialising in mental health. Her opinion of CBT is not high - overhyped, overused , varying in quality and patient blaming if poor engagement. Her concern is that there is not much else in NHS box of tricks to offer ...
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    Video: The PACE trial: a short explanation, Graham McPhee

    Has Carol Monaghan got a copy ?
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    Mapping illness

    Sorry tweet
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    Mapping illness

    I saw this on Twitter and wondered - Given that ME may have environmental triggers has anyone mapped where people with ME lived when they started being ill ( i know that this will be difficult for gradual onset) My interest is piqued as most of the mums i know are either rural ( potential...
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