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It's not just the treatment. Cancer sufferers benefit from many add ons that improve the quality of life ( wigs/ peripheral treatment such as acupuncture/ not such problems with disability benefits/ blue badge) what is the cost of this?

I think what we are missing is a coordinated campaign off the back of unrest. The media profile has been raised, we need to capitalise on this. If national coverage is difficult perhaps it has a local base to build from ( similar to Bristol Cable articles). In New Year i will look at getting...

I think it has its basis in the school study. As usual it conflates chronic fatigue with CFS/ME. Colby and Dowsett did a study re school illness in 1990s which may be more accurate. Higher numbers will justify the need for more research

Does Ben Goldenacre still run this ? http://compare-trials.org/methods Maybe too much of a hot potato to bring in PACE, SMILE etc?

It's about ticking boxes

My tuppenceworth Ann West1 second ago Tellingly, biomedical researchers into this condition have stated that they are not subject to harassment, and find patient support a key part of their work. There is something amiss with engagement of patient community, and the dissemination of a form of...

Think of the poor wee souls whose hormones naturally are doing a rollercoaster ride being given CBT for a growing number of conditions - if a perfectly healthy teenager cannot account for mood swings and emotions, identifying "triggers" may be an impossible task , leading them to self analyse...

It would have to be well worded so as not to constitute " vexatiousness" . Apologies if i have just made up a word

It' s my understanding that TEDx is a franchise - perhaps the franchisor organisation should also be sent a copy?

Let' s face it. It' s a cheap option that enables a box to be ticked.

We have added issues of having to have a Scottish teaching certificate to teach here. Online companies not interested in added costs for small market. Our school is interested but hemmed in by " procedure", which means nothing happening fast. Tymes Trust and Nissai chipping away, but nothing...

To me it beggars belief that in 21st century there is no joined up online educational provision for kids with chronic illnesses. Not even a national online resource ( like moodle in further education) . Current systems do not allow kids to reach their potential - a sad waste

http://www.nhsggc.org.uk/patients-and-visitors/main-hospital-sites/gartnavel-campus/nhs-centre-for-integrative-care/nhs-centre-for-integrative-care-therapies/holistic-chronic-fatigue-syndromeme-service/

I think it is a bit of everything now as it is within NHS referral service- it used to be homeopathic (dilutions). It now also offers mindfulness (as in buddhist version) and " couselling", as well as acupuncture etc...

Perhaps he' s an LP coach ....

Interestingly i spoke with a mum whose daughter has ME following Gardisil injection today. She has a referral to the homeopathic hospital as they provide pills to deal with lack of menstruation - seemingly sorts out hormonal issues these girls have. She will give me more details after her...

Because if you tell anyone what' s involved it dosn' t work (!)

Sadly altogether too true for many.... We live in hope ( and numerous other cliches)

Yes, there is a lot of truth in @Alvin and @JonathanEdwards' view - this will enable bigpharma to continue to outsource risk and produce " soundbite" medicine. But as i understand it ( and i could be wrong), there is also an interest in being able to deliver the right drug at the right time...

Not nonsense. My daughter is currently doing a masters in " stratified medicine", having done a degree in chemistry. This course has been running for a few years and is funded by Scottish government - illness/ genetics/ business/personalised care. In Scotland there are a huge amount of chronic...