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Thinking of knock on effects and expressions ( and apologies in advance for lack if acience background) Both my aunt and daughter have genetic variants of genes regulating eNOS and glutathione. Being female, I' m guessing estrogen has an impact on modulation ? Would these be knock on effects...

I think for those who cannot detox the aluminium out due to genetics, that this is a potential problem.

Yes, these could be gamechangers- for many illnesses/ conditions. We are thinking of fundraising to for a school trial. But, the benefits would seem to be limited to those mildly affected by ME. I don' t know what happens when you miss chunks of the curriculum with this - say a couple of...

Thanks Trish. On train and have not mastered selective cut and paste .

Given the published papers on this subject, i would not hold out much for much sense prevailing

If this is the wrong category please move This came from a twitter feed this morning and i know you will all have your own thoughts. Certainly a discussion provoker...

Teenagers in particular are very adept at this. Tell a person what they want to hear to make them go away.

I am speaking from a non science viewpoint, so apologize in advance if this is stupid, but would it not be better to run multiple gene association studies ( is it even possible to do this)? If things were down to a single gene, would tbat not have been found before now? A sysyems condition would...

Dangerous. There seems little understanding as to the nature of the condition. I would concur with @Dolphin ' s analysis. It is little wonder that many children go backwards, and full data never seems to be available from research studies. Notable always is the long term data - either missing/...

It is a shame Desmond Tutu is not still amongst us ( other than a joke reference to degree grades). What we need is a worldwide council for truth, hope and reconciliation..

Doctors' statistical skills are far from brilliant. Mine are poor and my GPs are worse.

I don' t have a clue: i had supposed remission in pregnancy was due to changes in immune system, but perhaps there are additional factors.

thanks Trish

From Thirdforce news today - http://thirdforcenews.org.uk/blogs/if-the-government-wont-take-me-seriously-who-will

It can actually be difficult to get a paediatrics appointment within 3 months from onset- GPs tend to suggest PVFS first and refer on afterwards if nothing is improving. It is paediatricians who generally diagnose, not GPs

Hormones ?

written prior to viewing the graph. It's anecdotal from forums, but dosn't look as though its borne out in reality as being significant as graphs show.

Update There is a meeting on Saturday, after which I will do a full update. FOIs are awaited re attendance and illness to frame a context. AfME staff , Theresa & Avril have been networking with other children's groups over the summer to try and frame this as a wider problem - which it is, and...

Given that there is a higher incidence of onset at adolescence / pregnancy/ menopause, does this finding reflect any potential impact to hormone synthesis ?

@Action for M.E. - please address the 2 year recovery period in your info for GPs, including advising those who have watched - there is so little evidence of this it is both unprofessional and harmful