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In Liverpool it is the guy who used to be on Oxford Circus years ago until he got an ASBO “don't be a sinner, be a winner”. He must have moved back home. He wants to ditch the PA system and get on X!

Well this seems like something the brain trainers could test scientifically. Y’know, it’s stats and data not qualitative interviews. Also something that could be tested in a control (non ME/CFS non LC) at the same time.

This is exactly how The Salt Path happened. Who was the disabled writer who did a brilliant blog post about how publishing kept telling her they basically want a recovery arc?

Also a good question. I just think if they are moaning that science cant measure things properly in relation to brain training, well it can measure that so they should run a trial.

It sure was a choice to categorise ME/CFS patients as any kind of homogeneous group. See also : pwLC, Scientists, Researchers. User generated message and topic fora have rules about what you can post, who knew? I guess thanks to the internet, we are all “patient activists” now. Whether you...

Well, yes the article is very much without sources. I’m not sure it’s anything Andy needs to look for, I was just asking generally

127 patients owned 431 animals. Wow. And the animals had atypical diseases or illness which mimicked ME? How would you know that? cats and dogs sleep at least 16 hours per day for a start. My cat dislikes going out and enjoys taking up space on my lying-down sofa, is entering old age and only...

Ah but the brain trainer observed that visualising climbing stairs increased the heart rate. So really I’m asking - has this been observed? To what extent is the rise? Had this been studied?

It’s not even fight or flight. It’s fight, flight, freeze or fawn.

I’m thrilled they are finally being studied and evaluated. Shame it’s not a popular discipline thesedays.

I was looking at the assertion in the wired article that, to paraphrase, people showed exertion/increased heart rate just visualising “climbing stairs” for instance. I can understand that might provoke some emotion and certainly that’s enough to push up heart rate, I have been in that...

Over on the wired article it’s stated as fact and I just wondered - 1. If it’s a physical biomedical issue that can be “seen” then you would expect the possibility of drug treatments, plus you could measure the change in it to establish the impact of braintraining 2. If it can’t be “seen”...

Ah you are confused on two levels. One, why he would go for a day at an axe-throwing experience, and two, why he would attempt a power stance holding axes at an axe-throwing experience and further, post it online to show others. A comparison - the “trend” before axes was crazy golf (indoors...

Yeah that’s what I thought.

Can I ask a stupid question because I’m foggy. You know medical biology and science, do they indicate that the nervous system is activated or stressed or inflamed? I know everyone in brainytrainy says the you get stuck in a feedback loop or whatever but either there is a biological phenomenon...

Oh I remember. Well he’s probably on his way out soon.

wonder when the whole book version is out?

But looking palatable isn’t a low bar?

Did he? Wow I am clueless. Probably a new new health minister imminent. Makes it tricky to lobby on ME/CFS doesn’t it.

Yeah not that bad, but we named “unappealing” animal body parts said to be used in a sausage. Ew and gristle!!!! I only had to eat them at school. “How the cake is made” might be a more acceptable version to a UK audience.