Search results

  1. Allele

    Action for ME have "reworked our treatment and symptom management page" and "updated our pages on GET and CBT"

    I know this is a terribly unpopular opinion here, but this has been my experience, at least in the US. (Though when we say alternative and complementary medicine we are not referencing psychology or psychiatry.) Without complementary medicine I may never have even got a diagnosis, much less...
  2. Allele

    David Tuller: Trial By Error: An Open Letter to The Lancet, Two Years On

    The list of signatories is quite stunning.
  3. Allele

    Video: The PACE trial: a short explanation, Graham McPhee

    @Graham, once again, bringin' it :cool:
  4. Allele

    Healthwise to "retire the GET/CBT topics" from medical content

    "change the behaviors that cause these chronic diseases" Well, that's a presumptive mouthful right there.
  5. Allele

    Michael Sharpe skewered by @JohntheJack on Twitter

    It's all part of his assertion that he "Wasn't there." Maybe if he says it enough times, history will correct itself and he will magically disappear.* *ETA: his wish, not mine, just to be clear
  6. Allele

    Michael Sharpe skewered by @JohntheJack on Twitter

    My reading is that he being subtly and elegantly diplomatic here. The man has some serious class.
  7. Allele

    Can anyone supply link to Karina Hansen's talk

    Did you mean Karin Wattum's speech? https://www.s4me.info/threads/millionsmissing-today-12-may-post-news-tweets-etc-here.4077/page-10#post-79332 If not, award me the Too Tired To Be Posting Award :)
  8. Allele

    Michael Sharpe skewered by @JohntheJack on Twitter

    @Woolie, I believe you're referencing the DUNNING-KRUGER EFFECT* *(sorry, I couldn't resist the ironic dumbsplaining and capitalisation :bag:)
  9. Allele

    Is Vodka Antiseptic?

    All of the above and also it is good for deodorizing. I sometimes add it to the laundry, or in a spray bottle w/ a few drops of some peppermint or other oil and spritz it on musty clothes. Also a solvent for ink.
  10. Allele

    Michael Sharpe skewered by @JohntheJack on Twitter

    Is this International Too Good To Be True Day?
  11. Allele

    Michael Sharpe skewered by @JohntheJack on Twitter

    I bow at Mike G's lotus feet for so many reasons, but that he acknowledges the public policy dimension has me prostrate on the floor with gratitude
  12. Allele

    Michael Sharpe skewered by @JohntheJack on Twitter

    Oh my goodness, it's Christmas again!
  13. Allele

    Strategic framework for activism with practical advice

    @Samuel , Thank you for breaking it down, I was overwhelmed by the sheer scope of the document.
  14. Allele

    Great interview: "From Fit Nurse To ME Warrior"

    Wow, she's great! Let's invite her over here :hug:
  15. Allele

    Question concerning XMRV

    This.
  16. Allele

    Michael Sharpe skewered by @JohntheJack on Twitter

    "cfs researcher" is a troll whose job it is to spread propaganda and discredit the "opposition". Always best to ignore, and simply post truth/facts without stepping in the trap.
  17. Allele

    Michael Sharpe skewered by @JohntheJack on Twitter

    Sorry if I was unclear, I wasn't being unfair or directing animosity to Esther. I know Esther understands this. I am trying to make the urgent point that it is necessary for the wider world to understand the nature of the influence this paper and BPS people have had. THAT is what is terribly...
  18. Allele

    Strategic framework for activism with practical advice

    I want to clear up a misconception that appears to be worldwide regarding the state of things in the US for ME patients: Yes, messaging-wise, and to a very small degree politically, we are way ahead today compared to even a few years ago. But in terms of real patients seeking real medical...
Back
Top Bottom