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  1. Allele

    Fundraiser for needy US patients:The American ME and CFS Society

    https://www.crowdrise.com/o/en/campaign/help-desperate-patients-get-crisis-support
  2. Allele

    Cognitive Impairments in Fibromyalgia Syndrome: Associations With Positive & Negative Affect, Alexithymia, Pain Catastrophizing.., 2018, Duschek et al

    It's doubly infuriating bc what they don't realise is that we chronics are, on the whole, the opposite of pain catastrophizers. I speak from direct experience when I say my pain threshold just gets higher over time. The only time I've been to Urgent Care ever was for a kidney stone, which is...
  3. Allele

    David Tuller lecture: CFS (aka ME) - Challenging the accepted dogma through research journalism

    He summarises with such clarity and precision. I cannot do this at all, it's too much info to distill, remember and communicate, yet he delivers such a clear and comprehensive message. Can't wait until this is transcribed for required reading in med school! SO grateful to you, @dave30th, so so...
  4. Allele

    Action for ME's administration and how that affects its views about treatment

    I still think their salaries are less interesting than who pays them.
  5. Allele

    Virology Blog: Can the big ship NIH turn at all?

    http://www.virology.ws/2018/04/05/can-the-big-nih-ship-turn-at-all/
  6. Allele

    Norway: ME Forening (ME Association)

    Oh, @chicaguapa, that's just awful. It's hard to fathom how deep and insidious the brainwashing has been. Good on you for keeping the pressure up. It's the modern-day equivalent of shunning, and it must stop!
  7. Allele

    Trial By Error: A Terrific Piece about ME/CFS on Australian TV | 4 April 2018 | David Tuller

    Excellent video, and a total tearjerker! :trophy@:cry: It is fantastic to see ever-higher-quality reporting hitting the media outlets.
  8. Allele

    Pediatric chronic fatigue syndrome: current perspectives (Crawley)

    So modern to retrogress to blaming the mums! Refrigerator mothers rise from their cryogenic sleep! And from the So Sciency Dept: "It is a complicated illness but the majority of children get better with specialist treatment."
  9. Allele

    Sugar

    In my case I am moderately allergic to cane sugar, so I defo feel better when avoiding it. I don't know what the current standards are in Europe/UK, but in the US sugar is one of the crops that is dessicated with glyphosate to make harvesting easier. This means the plant is drenched w herbicide...
  10. Allele

    Action for ME's administration and how that affects its views about treatment

    It's great that you are engaging here, Clare, thank you. I share the perspective that's being expressed here regarding the incongruity of some of the organisation's positions. Something does not really compute, so I am wondering if it possible to know who your biggest donors are? That may...
  11. Allele

    Migraine is really a brain disorder

    From 2013, but new to me. I really wish Stanford was including a subgroup of ME migraineurs in their brain study, bc we're a huge subgroup of ME patients. https://www.medscape.com/viewarticle/807274#vp_2
  12. Allele

    Let's talk wheelchairs and mobility scooters

    Cross your fingers for me, friends....am in the midst of email exchange with the used KD smart chair seller. If the stars align, I'll have it Monday!
  13. Allele

    House built on old golf course - yes or no ?

    Dechi, thank you for telling us the great news! I'm so, so happy for you, with all the best wishes for smooth, satisfying transactions all around. Truly overjoyed for this next phase in your new nest :party::emoji_hatching_chick::party:
  14. Allele

    House built on old golf course - yes or no ?

    Fingers crossed for you, Dechi!
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