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  1. Allele

    Open Medicine Foundation (OMF) fundraising

    Oh, yes, sorry, I meant top comment in the thread, not on Reddit front page.
  2. Allele

    Open Medicine Foundation (OMF) fundraising

    Upvoted the crap out of everything OMF-related on that thread...It's the top comment atm, hopefully more people can go comment and upvote!
  3. Allele

    Tuller / Trial By Error: The Crawley Chronicles, Resumed

    How is she even still allowed to practice "science"?
  4. Allele

    Which autoantibodies would you test for?

    For you. A long list of symptoms is not a problem for you, but trust me, as a patient, it's a huge problem. We all learned early on to cull/tailor our list for each specific specialist at this point, bc otherwise there is the rolling of the eyes, the pigeonholing, the suspicion, the...
  5. Allele

    Which autoantibodies would you test for?

    @Gingergrrl might have some very useful insights :whistle: Edited: to add a warm welcome to @Josie , just noticed this was your first post :hug:
  6. Allele

    Persistent postural-perceptual dizziness (PPPD): a common, characteristic and treatable cause of chronic dizziness (2017) Popkirov, Staab, Stone

    At what point did the meaning of "functional" go from "it's happening but we can't yet identify the cause" to "it's happening but we can't yet identify the cause so you must be imagining it"? Being dizzy is not funny. One cannot talk/think oneself into or out of it. Period. Also, using the...
  7. Allele

    ‘Healthy Privilege’ – when you just can’t imagine being sick

    I admit (shamefaced) that I was very judgy ages ago, before I was sick, though I did not know it, when I had a colleague with Fibro, and a client with severe MCS. It was the first time I had met people with these conditions and the first time I had had to use a specified personal care regimen to...
  8. Allele

    'Unrest' now in top 15 for documentary film Oscars

    Holy cow Jen's mojo just keeps getting better! This is crazy good news!
  9. Allele

    Blog: Anil van der Zee, "My promised saline IV update. How did it go?"

    Can someone please remind me of Anil's username here? I've forgotten it as well as my Disqus pw and would like to share some personal experience/info with him.
  10. Allele

    David Tuller Pre-Conference presentation at 12th Invest in ME Conference

    I secretly hope EC comes and asks *him* a question. Plus, bonus: she might learn something.
  11. Allele

    Esther Crawley gets 'commendation' at 2017 Maddox Prize awards.

    Yes, this is why they eventually pivoted to "highly vocal organised minority" or whatever whilst continuing their misinfo and diminishment of housebound bedbound sick people. *edited for: greater accuracy
  12. Allele

    Esther Crawley gets 'commendation' at 2017 Maddox Prize awards.

    @TiredSam, gold stars for you!
  13. Allele

    Article: Discovering community: A young woman with migraine finds support online

    Not to mention, how on earth is it newsworthy or even breathworthy that people are finding support online in 2017? "Woman Finds Adding Sugar To Tea Makes It Taste Sweeter".
  14. Allele

    Esther Crawley gets 'commendation' at 2017 Maddox Prize awards.

    Rest well, floppy lil superhero!
  15. Allele

    Annie Hoppers Dynamic Neural Retraining System

    Yes and promoted accordingly--as a coping tool--as well as not offered as a scammy pyramid-scheme overpriced hard-sell. That is just bullshit and predatory.
  16. Allele

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Oh, yes, Forbin, I wasn't addressing this to you, I was saying it generally. I knew what you meant, and I think he's right to challenge her; I've just seen this "challenging question" phrase repeated on the interwebs and it struck me that it could have an unwanted nuance down the line. Even...
  17. Allele

    Esther Crawley gets 'commendation' at 2017 Maddox Prize awards.

    Yes, really. Shame is not in his vocabulary, apparently. He confabulated the threats, got his fables into multiple news outlets, and then awarded himself a prize for courage in the face of scientific danger from disabled housebounders. Keep it classy, Sime.
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