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  1. Allele

    SIGN NOW! Jeremy Corbyn's e-card needs 20 signatures to reach 1,000! INTERNATIONAL SIGNATURES WELCOME!

    I agree, @Sasha. The bigger the number of signatories, the more heft Mr Corbyn might consider putting into the issue down the line.
  2. Allele

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    Yes, the way she coopted the "reframing the narrative of ME" for her own agenda, along with the traits you mention are what make me certain she has consulted a PR person. I did then go on to say that she appears to be manufacturing alternative facts when she goes off-script. However, on the...
  3. Allele

    SIGN NOW! Jeremy Corbyn's e-card needs 20 signatures to reach 1,000! INTERNATIONAL SIGNATURES WELCOME!

    I don't do social media, but has anyone shared this with Jen Brea? Her audience must be quite large by now. Also, LLewellyn King.
  4. Allele

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    PR companies are not interested in the truth. Their mission is branding and thus spin. I have zero doubt she uses a PR consultant at this point; it also appears she spontaneously generates "alternative facts" when under pressure. I'm very grateful Mr Tuller is keeping the pressure on, despite...
  5. Allele

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    David Tuller never fails to deliver the truth, unflinching. Thank you David!
  6. Allele

    Using PCs versus laptops when you're mostly in or on your bed

    Haha, I love where this thread went! Thanks for the much-needed giggles this day :laugh:
  7. Allele

    SIGN NOW! Jeremy Corbyn's e-card needs 20 signatures to reach 1,000! INTERNATIONAL SIGNATURES WELCOME!

    Sure, I grokked that--but it still seems 100% nonsensical to stick with a competitive/divisive construct and refuse to spread the word so that all patients who wish to can sign a Thank You to Jeremy Fricken Corbyn for giving some desperately needed high-profile attention to this disease and its...
  8. Allele

    SIGN NOW! Jeremy Corbyn's e-card needs 20 signatures to reach 1,000! INTERNATIONAL SIGNATURES WELCOME!

    I'm also confused by that response, as I don't see what it has to do at all with "other charities"? It is more about the entire patient population potentially benefitting from the attention of a high-profile government figure. That comment makes no sense to me at all.
  9. Allele

    Esther Crawley

    My femur and I have a bone to pick with this woman.
  10. Allele

    Seriously craving nuts to eat - why?

    Arginine may also be something your body is signalling for, and healthy fats.
  11. Allele

    Using PCs versus laptops when you're mostly in or on your bed

    fwiw i use a laptop with a desk similar to this: http://tinyurl.com/ydcuh65k but i use it differently than pictured here. It takes some trial and error to find the optimum position, but once you do, it's a handy item. (I use the bottom curvy lip towards me to hold the computer on the tray at my...
  12. Allele

    MEAction: Contact your MP and we'll send them a screener of UNREST

    A screener link in this case is an email with access info to an online copy of the film. They email you the link and a unique code so you can watch it, probably just the once.
  13. Allele

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Jeepers, no one is trying to silence you! I am suggesting that it's nice to use discernment in who we chose to publicly scorn, and you've used yours, more power to you. I'd like to use my voice as well.
  14. Allele

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    I agree with that completely. I am suggesting that it is best to focus criticism on those who are causing damage, rather than those who are doing their best as an ally. Especially when they pivot to a PoV you are in alignment with--worthy more of praise then.
  15. Allele

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Let's please focus on the great things Jen is doing, which are many.
  16. Allele

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    If that's true about Gill, it would explain why the video talk is no longer available.
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