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  1. Allele

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    JaimeS' speech: Hi everyone, my name is Jaime, I was managing editor at MEAction for about a year, I worked at Stanford for about a year, and now I’m back at MEAction. You may know me on Phoenix Rising as JaimeS. I’m actually not going to talk about myself today. I’m going to talk...
  2. Allele

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    I'd be happy to transcribe yours if no one's already on it.
  3. Allele

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    So powerful, Jaime. So powerful. Thank you. :hug:
  4. Allele

    Trust in the Context of ME. My #MayAwareness blog post

    Well done, Sally, and so nice to hear your soothing voice as well :angel:
  5. Allele

    Janet Dafoe - The Whitney Plea

    Agreed, and the potential for mocking is very high. We don't need any more mocking. I'm imagining a late night host or stand-up comic making the twirly hand motion and saying something rude :( I appreciate what Janet is getting at here, but more thought needs to go into the audience. I agree...
  6. Allele

    Esther Crawley's contribution to #MEawarenessweek

    So much to be nauseated by in this puff-piece of self-promotion, but one thing I find really telling is this weirdness: "My teenagers are often attached to the Wifi by an invisible umbilical cord so I would assume all teenagers would love online treatment." (Emphasis mine) Just, eeew.
  7. Allele

    David Tuller Trial By Error: My Visits with Alem Matthees

    Disney doesn't sue you if you wear a mickey mouse tshirt to the protest. This is that kind of fair use. It's a birthday card.
  8. Allele

    David Tuller Trial By Error: My Visits with Alem Matthees

    No copyright issue here, it's fair use. Think of it as we made him a superman photo cake.
  9. Allele

    David Tuller Trial By Error: My Visits with Alem Matthees

    There would be no copyright issue for a use like this. It is not a commercial application, no one is selling anything or making any money.
  10. Allele

    David Tuller Trial By Error: My Visits with Alem Matthees

    I did the best I could without pshop and no time, and I don't even know if it's the right res to print out big.
  11. Allele

    David Tuller Trial By Error: My Visits with Alem Matthees

    @Graham, I've PMed you I made a superhero birthday poster for Alem.
  12. Allele

    David Tuller Trial By Error: My Visits with Alem Matthees

    HAPPY BIRTHDAY ALEM MATHEES! PACE-Buster Supreme! or Pulled the pants off PACE! or Put PACE in its PLACE A True Hero • We Love you!
  13. Allele

    Janet Dafoe - The Whitney Plea

    True, but the visual impact of ever more filing the screen, in one sitting, is less easily dismissed or forgotten. Just sayin, if someone has the knowhow to do that I think it would be a strong message.
  14. Allele

    Janet Dafoe - The Whitney Plea

    It's a lovely idea, but nobody at NIH or whatever is going to watch hundreds of videos. I think it would require someone to make a mosaic-style video, which might have its own kind of powerful impact.
  15. Allele

    Re-framing GET as pacing, or vice-versa

    I believe it's all in the big ugly bag of water-muddying terminology that hijacks terms and turns them on their head so that nobody knows, or only thinks they know, what anybody else is talking about.
  16. Allele

    A unifying theory for cognitive abnormalities in functional neurological disorders, Fibromyalgia and CFS (2018), Mark J Edwards et al.

    I remain appalled at the sound of crickets from the medical community about these hijackings and the non sensical musings behind them. Where is the outcry and the outrage? Why are people so ready to adopt these blame-the-patient theories? Oh, I forgot, illness, tragedy, and misfortune are the...
  17. Allele

    Burning heat sensation when seated for a long time

    If you are in your 40s, have you considered a pre-menopausal causation?
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