Search results

Did you read it? It's not really garbage at all, imo.

I'm not sure we should make a consensus reality out of the concept that ME is "pseudoscientific." I'm not keen on the name myself, but FWIW the neurologist I consulted used the ICD code for myelitis, encephalitis, encephalomyelitis: unspecified in my documentation. That sure beats "CFS" in terms...

@Gary Burgess I think it would be grand at some point to do several segments about the politics of the disease, and the commercial interests driving those politics. It could be interesting to invite Hillary Johnson on, as she is particularly well-versed in that area, at least stateside, and...

See also @Samuel's excellent essay with this same theme: https://www.s4me.info/threads/michael-sharpe-skewered-by-johnthejack-on-twitter.3464/page-5#post-63813

I'm guessing the reference is to those who may still be gun-shy from the legacy of CAA? Personally I think SMCI has been an amazing resurrection from the trashheap that was its forbear.

oopsie

Thank you, Gary, I'm really looking forward to listening :)

This is a rising worldwide issue everyone should be alarmed about. There are already terms for these things, like "oppositional defiance disorder" etc. Taken in context with the "new" global policing, which includes that you can and will be arrested for nothing more than not following an...

:rofl: Arnie Pie you're on a roll today! I basically take 1 350mg capsule at night, with a daytime dose when I remember (I often forget my daytime doses of everything, even with alerts, am so forgetty.) I have no idea if this works in combo with the other things I'm taking, but the shift was...

I can't take any NSAIDS at all, and have a good deal of constant body-wide pain that drives me nuts. I am currently trialling, with surprising success, PEA (palmitoylethanolamide). Was expecting it to do nothing, really, and I'm very pleasantly surprised by how many notches the general pain...

His reply just now:

Please go upvote the questions about ME/CFS so they stay visible: (start with www.) reddit.com/r/science/comments/8dn0jo/im_francis_collins_director_of_the_national/

Please everyone go upvote the questions about ME/CFS so they stay visible! Also, many thanks to whomever has been giving them gold!

I think Carol Head is great, but after years of watching CFSAC do worse than nothing, and become increasingly hostile to patients, I've rather given up on them as an entity of any use or significance. Maybe Carol can give them a good shakeup like she did with CAA!

Does anyone have the capacity on SM to bring this to the attention of Hillary Johnson, Laura Hillenbrand, Howard Bloom, Stuart Murdoch, Lleywellyn King.....generally people who might have very large followings for retweeting/reposting? Also whatever happened to Mindy Kitai? She's a science...

Other than making the general population accustomed to/afraid of having their agency removed by the state, I can't understand why a system would want to bear the cost and burden of sectioning people in large numbers. Is it simply the private prison model?

they are for me :thumbup:

:emoji_champagne_glass::heart:All the best to both of you for a rich and joyful life together :heart::emoji_champagne_glass: ****and good job on the pro-level pacing the day of!***

The ignorance and bigotry of this approach is so blatant if you reread it while substituting the word "cancer" for "CFS".

I wonder what made them think a vibrating ballon catheter for treating rhinitis would effectively treat ME? I mean, that would be great, but, erm, unlikely.