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    25% ME Group - new website

    The 25% ME group new website is now definitely up and running – 25% ME Group Launches New Website https://25megroup.org/25-me-group-launches-new-website By Simon Lawrence Sound the fanfares!! We are delighted to launch our new website, which is now live, and also to apologise for any...
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    The 25% ME Group: The Crushing Physical Burden of ME

    The 25% ME Group: The Crushing Physical Burden of ME by Simon Lawrence of the 25% ME Group for those with severe ME on 14/08/2018 https://25megroup.org/the-crushing-physical-burden-of-me There is clear evidence that ME is not the same as depression or any other psychiatric disorder. In 2015...
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    ME Association: Tribute paid to M.E. advocate Prof. Norman Booth who died last week

    ME Association: Tribute paid to M.E. advocate Prof. Norman Booth who died last week | 13 August 2018 https://www.meassociation.org.uk/2018/08/tribute-paid-to-m-e-advocate-prof-norman-booth-who-died-last-week-13-august-2018/ It is with great sadness that we write to let you know that Professor...
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    Severe ME day: August 8th 2018

    Phoenix Rising: August 8th, 2018: Understanding and Remembrance Day for Severe ME https://phoenixrising.me/archives/29564 August 4, 2018 Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the...
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    Huffington Post: Having ME Is Like Being Permanently Encased In A Suit Of Armour

    Huffington Post: Having ME Is Like Being Permanently Encased In A Suit Of Armour https://m.huffingtonpost.co.uk/amp/entry/myalgic-encephalomyelitis-how-it-feels_uk_5b61badbe4b0fd5c73d524cc/ I have, for a long time, struggled to fully get across the impact this illness has on my life...
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    Submissions on Draft Scope for the NICE Guideline Review, 2018

    (Thread merged) ME Association: NICE ME/CFS Clinical Guideline Review: ME Association Submission re: Scoping Report | 02 August 2018 http://www.meassociation.org.uk/2018/08/nice-me-cfs-clinical-guideline-review-me-association-submission-re-scoping-report-02-august-2018/ As part of the...
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    Jessica Taylor-Bearman: Dear Bug… I Want to Live So Very Much Yet My Body Isn’t Letting Me

    Dear Bug… I Want to Live So Very Much Yet My Body Isn’t Letting Me Jessica Taylor-Bearman August 1, 2018 http://www.jaytay.co.uk/2018/08/01/dear-bug-i-want-to-live-so-very-much-yet-my-body-isnt-letting-me/ In the past few weeks, I have been dealing with the frustrations of wanting to be...
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    BBC: 'Vindication' for woman who wanted ME on death certificate

    BBC: 'Vindication' for woman who wanted ME on death certificate https://www.bbc.co.uk/news/health-44969741 The family of only the second person in the UK to have ME recorded on their death certificate say they feel "vindicated" by the ruling. Merryn Crofts from Rochdale died in May last year...
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    ME Association: Dr Shepherd provides an update on antibiotic use in M.E. and highlights concerns about quinolones and fluroquinolones

    ME Association: Dr Shepherd provides an update on antibiotic use in M.E. and highlights concerns about quinolones and fluroquinolones...
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    Invest in ME Research: 13th IiMER International Conference Report 2018

    Invest in ME Research: 13th IiMER International Conference Report 2018 Webpage - http://www.investinme.eu/IIMEC13.shtml#report PDF File - http://www.investinme.eu/Documents/IIMEC13/IIMEC13%20Conference%20Report.pdf The 13th Invest in ME Research International ME Conference on 1st June 2018 in...
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    25% ME Group - new website

    Although it was definitely working OK for me earlier it isn't doing so now. Maybe they are just testing it before getting it online properly.
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    25% ME Group - new website

    Hello Trish and Andy, That's very odd and I can't explain it. I don't have special access or anything - I'm just looking at the site on a normal laptop using the chrome browser.
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    25% ME Group - new website

    The 25% ME Group - for those with severe ME - has a newly designed website - https://25megroup.org/ From the page "What is severe M.E.?" - https://25megroup.org/me ME is a WHO classified neurological disease with multi-system dysfunction. It is a physical disease that in its more...
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    Malcolm Hooper: Letter from Professor Hooper to Bridget Phillipson MP

    Malcolm Hooper: Letter from Professor Hooper to Bridget Phillipson MP http://www.margaretwilliams.me/2018/hooper-to-phillipson.pdf 16th July 2018 Dear Bridget, Many thanks for forwarding the letter of 14th June 2018 (PO-1133220) from Lord O’Shaughnessy, Parliamentary Under Secretary of...
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    Belfast Telegraph: Doctors 'do more harm than good' sending ME patients to gym

    Belfast Telegraph: Doctors 'do more harm than good' sending ME patients to gym https://www.belfasttelegraph.co.uk/news/health/doctors-do-more-harm-than-good-sending-me-patients-to-gym-37129397.html Thousands of people are being put at risk as doctors tell patients with a devastating...
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    David Tuller: Trial By Error: The Contentless “Editor’s Note” About the Lightning Process Trial

    Trial By Error: The Contentless “Editor’s Note” About the Lightning Process Trial http://www.virology.ws/2018/07/16/trial-by-error-the-contentless-editors-note-about-the-lightning-process-trial/ 16 July 2018 By David Tuller, DrPH Last week, I noticed that Nick Brown, the editor-in-chief of...
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    David Tuller: Trial By Error: Do All Clinical Trial Experts Love PACE?

    Trial By Error: Do All Clinical Trial Experts Love PACE? 9 July 2018 By David Tuller, DrPH http://www.virology.ws/2018/07/09/trial-by-error-do-all-clinical-trial-experts-love-pace/ Professor Michael Sharpe blocked me on Twitter many weeks ago but apparently can’t restrain himself from...
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    Ron Davis: Grant award: Molecular and single-cell immunology in ME/CFS

    OMF: HealthRising: Ron Davis (Finally) Gets His Big Grant! https://www.omf.ngo/2018/06/26/davis-nih-grant/ June 26, 2018 This #OMFScienceWednesday we share the exciting news that Dr. Ron Davis and his team have received an NIH award for 5 years, $3.9 million total grant of which $2.5 million...
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    Mirror: Tory minister demands comedian Ricky Gervais apologises for branding ME sufferers 'lazy' in offensive joke

    Mirror: Tory minister demands comedian Ricky Gervais apologises for branding ME sufferers 'lazy' in offensive joke https://www.mirror.co.uk/news/politics/tory-minister-demands-comedian-ricky-12767943 A Government minister has demanded Ricky Gervais publicly apologise for a joke branding ME...
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    Rochdale Online: MP calls for “much more to be done to tackle ME”

    Rochdale Online: MP calls for “much more to be done to tackle ME” http://www.rochdaleonline.co.uk/news-features/2/news-headlines/119844/mp-calls-for-much-more-to-be-done-to-tackle-me Liz McInnes, Member of Parliament for Heywood and Middleton, has called for “much more to be done to tackle ME”...
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