The 25% ME group new website is now definitely up and running –
25% ME Group Launches New Website
https://25megroup.org/25-me-group-launches-new-website
By Simon Lawrence
Sound the fanfares!! We are delighted to launch our new website, which is now live, and also to apologise for any...
The 25% ME Group: The Crushing Physical Burden of ME
by Simon Lawrence of the 25% ME Group for those with severe ME on 14/08/2018
https://25megroup.org/the-crushing-physical-burden-of-me
There is clear evidence that ME is not the same as depression or any other psychiatric disorder. In 2015...
ME Association: Tribute paid to M.E. advocate Prof. Norman Booth who died last week | 13 August 2018
https://www.meassociation.org.uk/2018/08/tribute-paid-to-m-e-advocate-prof-norman-booth-who-died-last-week-13-august-2018/
It is with great sadness that we write to let you know that Professor...
Phoenix Rising: August 8th, 2018: Understanding and Remembrance Day for Severe ME
https://phoenixrising.me/archives/29564
August 4, 2018
Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the...
Huffington Post: Having ME Is Like Being Permanently Encased In A Suit Of Armour
https://m.huffingtonpost.co.uk/amp/entry/myalgic-encephalomyelitis-how-it-feels_uk_5b61badbe4b0fd5c73d524cc/
I have, for a long time, struggled to fully get across the impact this illness has on my life...
(Thread merged)
ME Association: NICE ME/CFS Clinical Guideline Review: ME Association Submission re: Scoping Report | 02 August 2018
http://www.meassociation.org.uk/2018/08/nice-me-cfs-clinical-guideline-review-me-association-submission-re-scoping-report-02-august-2018/
As part of the...
Dear Bug… I Want to Live So Very Much Yet My Body Isn’t Letting Me
Jessica Taylor-Bearman
August 1, 2018
http://www.jaytay.co.uk/2018/08/01/dear-bug-i-want-to-live-so-very-much-yet-my-body-isnt-letting-me/
In the past few weeks, I have been dealing with the frustrations of wanting to be...
BBC: 'Vindication' for woman who wanted ME on death certificate
https://www.bbc.co.uk/news/health-44969741
The family of only the second person in the UK to have ME recorded on their death certificate say they feel "vindicated" by the ruling.
Merryn Crofts from Rochdale died in May last year...
Invest in ME Research: 13th IiMER International Conference Report 2018
Webpage - http://www.investinme.eu/IIMEC13.shtml#report
PDF File - http://www.investinme.eu/Documents/IIMEC13/IIMEC13%20Conference%20Report.pdf
The 13th Invest in ME Research International ME Conference on 1st June 2018 in...
Hello Trish and Andy,
That's very odd and I can't explain it. I don't have special access or anything - I'm just looking at the site on a normal laptop using the chrome browser.
The 25% ME Group - for those with severe ME - has a newly designed website -
https://25megroup.org/
From the page "What is severe M.E.?" - https://25megroup.org/me
ME is a WHO classified neurological disease with multi-system dysfunction.
It is a physical disease that in its more...
Malcolm Hooper: Letter from Professor Hooper to Bridget Phillipson MP
http://www.margaretwilliams.me/2018/hooper-to-phillipson.pdf
16th July 2018
Dear Bridget,
Many thanks for forwarding the letter of 14th June 2018 (PO-1133220) from Lord O’Shaughnessy, Parliamentary Under Secretary of...
Belfast Telegraph: Doctors 'do more harm than good' sending ME patients to gym
https://www.belfasttelegraph.co.uk/news/health/doctors-do-more-harm-than-good-sending-me-patients-to-gym-37129397.html
Thousands of people are being put at risk as doctors tell patients with a devastating...
Trial By Error: The Contentless “Editor’s Note” About the Lightning Process Trial
http://www.virology.ws/2018/07/16/trial-by-error-the-contentless-editors-note-about-the-lightning-process-trial/
16 July 2018
By David Tuller, DrPH
Last week, I noticed that Nick Brown, the editor-in-chief of...
Trial By Error: Do All Clinical Trial Experts Love PACE?
9 July 2018
By David Tuller, DrPH
http://www.virology.ws/2018/07/09/trial-by-error-do-all-clinical-trial-experts-love-pace/
Professor Michael Sharpe blocked me on Twitter many weeks ago but apparently can’t restrain himself from...
OMF: HealthRising: Ron Davis (Finally) Gets His Big Grant!
https://www.omf.ngo/2018/06/26/davis-nih-grant/
June 26, 2018
This #OMFScienceWednesday we share the exciting news that Dr. Ron Davis and his team have received an NIH award for 5 years, $3.9 million total grant of which $2.5 million...
Mirror: Tory minister demands comedian Ricky Gervais apologises for branding ME sufferers 'lazy' in offensive joke
https://www.mirror.co.uk/news/politics/tory-minister-demands-comedian-ricky-12767943
A Government minister has demanded Ricky Gervais publicly apologise for a joke branding ME...
Rochdale Online: MP calls for “much more to be done to tackle ME”
http://www.rochdaleonline.co.uk/news-features/2/news-headlines/119844/mp-calls-for-much-more-to-be-done-to-tackle-me
Liz McInnes, Member of Parliament for Heywood and Middleton, has called for “much more to be done to tackle ME”...
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