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  1. TiredSam

    You make me tired: An experimental test of the role of interpersonal operant conditioning in fatigue 2018 Bert Lenaert et al

    I'd be interested to know what they considered to be "subtle social reward" too. I wouldn't find a psychologist leering at me ingratiatingly particularly rewarding, and if one frowned at me I'd just find it funny. How did they reward the patients who couldn't give a f*** what the psych thinks of...
  2. TiredSam

    You make me tired: An experimental test of the role of interpersonal operant conditioning in fatigue 2018 Bert Lenaert et al

    I've had ME for 4 years and I've yet to receive my reward. When's it coming? If it carries on like this I'm considering giving up and pretending to have something else. Why don't alleged ME sufferers just stop pretending more often by the way? Being ignored, belittled, abused, starved and...
  3. TiredSam

    PACE Trial application to MRC for funding in 2002

    A testament to his modesty, I'm sure. What else?
  4. TiredSam

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    What a thoroughly offensive title. A humorous reference to the Legend of Camelot I expect, but it's hardly a subject for levity. Everything's just one big joke to Sir Simon.
  5. TiredSam

    A comparison of UK and German healthcare provision

    Doctor shopping is easy in Germany, so it's easy to just change from one you don't like. And I've never had a problem being referred to a specialist, or just going to see one without a referral. When I had an operation they kept me in hospital for more nights than they needed to because they get...
  6. TiredSam

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    Done. @Dolphin don't mean to go over your head, please feel free to edit the title again as you see fit.
  7. TiredSam

    Positive Health Online: ME/CFS, NLP and the Lightning Process in the Looking Glass

    The word invalid has two meanings, depending on how you pronounce it. At the moment we are being categorised as the wrong one.
  8. TiredSam

    Ron Davis speaks at University of Texas at Dallas

    I have lived in my village of 1500 inhabitants for 20 years. There's a guy I always thought was a little odd - when I saw him walking in the woods and greeted him he just looked at me as if he didn't quite understand. Found out 16 years later that he has ME. It was a friend of my wife who told...
  9. TiredSam

    Campaigners in Scotland call for more ME funding

    From the above-referenced article: https://www.pressandjournal.co.uk/fp/uncategorized/1402870/exclusive-north-east-family-speak-of-me-ordeal/ I think it is very important to be concerned about what might happen when politicians are asked to consider the problem of lack of specialist care for...
  10. TiredSam

    Positive Health Online: ME/CFS, NLP and the Lightning Process in the Looking Glass

    @Wonko I think that's called "acceptance". I substitute "Meh" with a swearword, but it's much the same thing.
  11. TiredSam

    Unrest - reviews and general articles

    I've commented on this one (not the first Sam, the second, currently awaiting approval*). I find the idea of someone with a small personal blog suddenly being love-bombed by thousands of grateful ME sufferers quite funny for some reason. Not saying we should do it, just that I find the idea...
  12. TiredSam

    ME generation want better care across Scotland

    People try, to put us down ...
  13. TiredSam

    United Kingdom: The Royal Society of Medicine

    I suspect one reason that Simon Wessely seems so unperturbed when we gain ground in the PACE debate is that he is busy making progress on a number of other fronts, many of which we are unaware of.
  14. TiredSam

    Resources for Parents with ME - helping children come to terms with chronic illness

    Sorry but I disagree, if you are worried I would read everything you can about it and then follow your own judgement, including any useful nuggets you might have picked up from your reading and disregarding any nonsense you might have had to wade through. As the father of 3 boys, here's a book I...
  15. TiredSam

    United Kingdom: The Royal Society of Medicine

    Is it just me or did anyone else feel uneasy hearing the phrase "end of life care" coming out of Wessely's mouth? He does have a history of taking standard terms and giving them a whole new meaning before anyone realises what he's up to.
  16. TiredSam

    Parents trying to cure autism by giving children MMS/bleach, article, investigation, petition

    Only here. Apparently they've had them in the Andromeda Galaxy for quite some time. They're light years ahead of us.
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