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@Inara @Joh

I'd be interested to know what they considered to be "subtle social reward" too. I wouldn't find a psychologist leering at me ingratiatingly particularly rewarding, and if one frowned at me I'd just find it funny. How did they reward the patients who couldn't give a f*** what the psych thinks of...

My guess is that she raised one eyebrow and wrote "masochistic tendencies" on the form.

I've had ME for 4 years and I've yet to receive my reward. When's it coming? If it carries on like this I'm considering giving up and pretending to have something else. Why don't alleged ME sufferers just stop pretending more often by the way? Being ignored, belittled, abused, starved and...

A testament to his modesty, I'm sure. What else?

What a thoroughly offensive title. A humorous reference to the Legend of Camelot I expect, but it's hardly a subject for levity. Everything's just one big joke to Sir Simon.

Brilliant :laugh:

Doctor shopping is easy in Germany, so it's easy to just change from one you don't like. And I've never had a problem being referred to a specialist, or just going to see one without a referral. When I had an operation they kept me in hospital for more nights than they needed to because they get...

Done. @Dolphin don't mean to go over your head, please feel free to edit the title again as you see fit.

The word invalid has two meanings, depending on how you pronounce it. At the moment we are being categorised as the wrong one.

I have lived in my village of 1500 inhabitants for 20 years. There's a guy I always thought was a little odd - when I saw him walking in the woods and greeted him he just looked at me as if he didn't quite understand. Found out 16 years later that he has ME. It was a friend of my wife who told...

From the above-referenced article: https://www.pressandjournal.co.uk/fp/uncategorized/1402870/exclusive-north-east-family-speak-of-me-ordeal/ I think it is very important to be concerned about what might happen when politicians are asked to consider the problem of lack of specialist care for...

Fabulous.

@Wonko I think that's called "acceptance". I substitute "Meh" with a swearword, but it's much the same thing.

I've commented on this one (not the first Sam, the second, currently awaiting approval*). I find the idea of someone with a small personal blog suddenly being love-bombed by thousands of grateful ME sufferers quite funny for some reason. Not saying we should do it, just that I find the idea...

People try, to put us down ...

I suspect one reason that Simon Wessely seems so unperturbed when we gain ground in the PACE debate is that he is busy making progress on a number of other fronts, many of which we are unaware of.

Sorry but I disagree, if you are worried I would read everything you can about it and then follow your own judgement, including any useful nuggets you might have picked up from your reading and disregarding any nonsense you might have had to wade through. As the father of 3 boys, here's a book I...

Is it just me or did anyone else feel uneasy hearing the phrase "end of life care" coming out of Wessely's mouth? He does have a history of taking standard terms and giving them a whole new meaning before anyone realises what he's up to.

Only here. Apparently they've had them in the Andromeda Galaxy for quite some time. They're light years ahead of us.